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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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I think the MEA has advice on this @charles shepherd may be able to point in the right direction. Its been discussed on other threads in previous years I think. But no clear answer. One factor I think I remember being discussed was the chance of picking up flu if someone is too ill to go to places where they may get the flu.
No from me also. I've never had one and never will.
My mother had a serious reaction a couple of years ago to a flu vaccination. The day after the vaccination she was bedridden for six weeks with vertigo and went deaf in one ear.
Yeah.I had one a few years before coming down with this illness due to Mono.
One of the winters when I did get the Flu shot, I was healthy then, not diagnosed with anything, but would come home from work 1 day a week and sleep for about 12 hours. Changed jobs and got the flu shot with my new employer, mentioned it to the person coordinating that effort, and she said she had the same experience, weird!
GG
Yeah.
My mother had being getting a flu shot for a few years beforehand and had not had any notable reaction. So things can change. I still take the risk with tetanus vaccination and seem ok with that one for now but I do feel the flu vaccination is definitely not for me.
I'm thinking I might just stick with the tetanus. I'm not sure if I want to try any other in the future since having ME.No tetanus for me now for 20 years, heard the shingles vaccine is good to consider though, wonder if we might have more info on that eventually?
GG
I'm considering getting a flu shot next year. I have too many things that make it so I can easily get pneumonia, also I can't do antibiotics if things get worst and I need that treatment. And I'm too laid up as it is, can't afford at all to be knocked down several more levels with a flu. The shot doesn't guarantee you won't get the flu (more than I can go into right now) but it does increase the odds of a person not getting it. Then again we each need to weigh out how it may affect us and our ME/CFS.
I get mine done at a kid's clinic. Theirs doesn't contain thimerosal, the mercury-based preservative. Some doctor's offices have it without too. Need to ask them for it.
Yeah.
My mother had being getting a flu shot for a few years beforehand and had not had any notable reaction. So things can change. I still take the risk with tetanus vaccination and seem ok with that one for now but I do feel the flu vaccination is definitely not for me.