Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
To become a member, simply click the Register button at the top right.
Haha, how about doing so yourself? Do you have any evidence at all that KDM is a crook?
I have, or at least I have gone from being largely housebound to being healthy enough to study for full-time for a Masters.
I would still like some evidence for your claim when you are ready. Please, elaborate.
You do not seem to understand that it is not me, but Meirleir, that`s supposed to provide scientific evidence. I know he does not have it, and anecdotal reports means jack all.
@msf actually everyone can see that de Meirleir is a quack based on your arguments. Nothing says "I've lost this debate" more than trying to defend an unproven treatment by demanding that others present evidence it doesn't work.
I think everyone should provide evidence for their claims. You claimed that KDM is a crook, yet you have provided no evidence for this. Therefore I suggest people disregard your claim, just as you suggest that people should disregard KDM´s claims.
Yep, not getting the point. There are many doctors who prescribe drugs off-label. Do you have any evidence that KDM is breaking the law in doing this? Or do you just like to throw terms like ´crook´ around to get a rise out of people, as a troll would for example?
Honestly there seems to be a complete denial of the importance of having independent data to ground your treatment suggestions on. There is no qualitative difference between physicians claiming X works, because they have seen X in blood tests, compared to e.g. psychologists claiming X works cause a lot of patients said X works. In both scenarios there is no scientific evidence at all. And then one might say, "oh but at least he tries to help etc", yes, but he`s making money off patients with promises he can`t keep. That, is just a huge no-no on my part.
Diverging again. Providing drugs off-label is potentially illegal in many countries, but that`s not the point. The point is that he has no studies to base his prescriptions on, and you`re asking me to provide evidence for that, when the evidence is the lack of evidence.
Again. There's scientific evidence about what he gives for leaky gut. The same for Lyme & other kind of infections. There are not any scientific evidence about treating ME by treating leaky gut, but it's important to distinguish both
There are scientific evidences that rifaximin (or herbal protocols) helps with SIBO/leaky gut, so you can't say that there isn't. You can claim that there is no evidence that it can cure or help patients with ME, then yes I agree with you.
But saying he prescribed X medication based on no scientific evidence is false. What is controversial is if those kind of treatments for X problems can help people with ME.
No, I´m not, I´m asking you to provide evidence that he is a crook, which if it means anything (rather than just being a slur) means that he is breaking the law. You have completely failed to do so, so I can only conclude that you were just throwing insults around without any evidence for them.
yes, but he`s making money off patients with promises he can`t keep
Where is the evidence for the supposed leaky gut syndrome to have any relevance for ME. If there`s no such evidence, then my statement is not false. You don`t give MS-patients antibiotics in national healthcare, and for good reasons.