Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Hey M.E. warriors!
Please can anyone tell me if they have or are currently taking Samento? If you are, or have, any information on your experiences, results would be greatly welcomed. Please can you state your level of severity with M.E. also as I have severe M.E.
THANKS GUYS
Thanks Jenny, really good to know as you get your hopes up that this will be the one thing that might help ease the suffering even just a bit, especially when all you read is how people how recovered from it!Used it about 10 years ago for 6 months. Had to increase dose very slowly as it made me feel worse for a while. But it had no impact on my ME. My condition is moderate.
I too have severe M.E and tried Samento.
It caused almost immediate autoimmune Scleritis that was agony and took a month to resolve.
What is autoimmune sclerotia and what are the symptoms themjay? What dosage were you on?
Hey M.E. warriors!
Please can anyone tell me if they have or are currently taking Samento? If you are, or have, any information on your experiences, results would be greatly welcomed. Please can you state your level of severity with M.E. also as I have severe M.E.
THANKS GUYS