Community Symposium on molecular basis of MECFS! DISCUSSION THREAD!

[Ben H]

Hi guys,

So I thought I'd start this thread where we can all have a discussion and post any thoughts-pre, during and post-Symposium!

Things are hotting up! The scientists that are flying in tonight and having dinner at the local hotel! I'm sure some good discussion will be had here. Janet @Janet Dafoe (Rose49) had also told me that her house is practically a production line at the moment with Ashley @AshleyHalcyoneH putting together the conference folders full of information for everyone!

So please post away, and myself and @Janet Dafoe (Rose49) will also be posting before and throughout the Symposium.

Enjoy,


B

 

[A.B.]

Okay, the question that everyone wants to ask: do you have any big announcements?

 

[Ben H]

Okay, the question that everyone wants to ask: do you have any big announcements?

I'm pretty sure there will be some big announcements and discussions at the Symposium from the incredible scientists attending. Right now, the big announcement is Janet is getting ready for tonight and Ashley's little dog is licking her feet


B

 

[Ben H]

Do we have a member count of who is attending in person?


B

 

[me/cfs 27931]

Do we have a member count of who is attending in person?

B

I'll be there. Wouldn't miss this for the world.

 

[perrier]

Ok, forgive me for being a ninny but I have registered twice now and don't know how to get on once the event begins.

Do I reclick on register and where it says LIVE hope to get in once it all begins?

Can some one please outline how to hear the live stream step by step.

Thank you

 

[perrier]

I should add after the first registration no confirmation email arrived. Same just now....I reregistered and just checked-- no confirmation email

 

[Ben H]

I'll be there. Wouldn't miss this for the world.

Awesome @Webdog . Really glad to hear!

Ok, forgive me for being a ninny but I have registered twice now and don't know how to get on once the event begins.

Do I reclick on register and where it says LIVE hope to get in once it all begins?

Can some one please outline how to hear the live stream step by step.

Thank you

Hey @perrier

You can simply go to omf.ngo (OMF homepage) on Saturday at 9am Pacific Time and it will be viewable there.


B

 

[NL93]

I'm so excited! And I just can't hide it

Seriously though I am really looking forward to following everything Saturday from the comfort of my own home

 

[Alvin2]

Awesome @Webdog . Really glad to hear!



Hey @perrier

You can simply go to omf.ngo (OMF homepage) on Saturday at 9am Pacific Time and it will be viewable there.


B

Thanks for telling us this, will the entirety be put up on youtube, i'm pretty bad today and don't know if i will be able to watch live by saturday.

 

[Wonko]

I also, low confidence I could manage 8 hours continuous regardless of how much I want to or how interesting it is.

 

[Alvin2]

I also, low confidence I could manage 8 hours continuous regardless of how much I want to or how interesting it is.

8 hours, aye carumba, i can't do that on my best day

 

[Kati]

I also, low confidence I could manage 8 hours continuous regardless of how much I want to or how interesting it is.

From what I understand it will be on Youtube, so you can pick up where you left off.

 

[Nickster]

On the eve of this great symposium, I am praying, chanting, meditating and dancing for these scientists/researchers to come together with their ideas and teamwork to find a treatment/cure for this awful disease.
Anything is possible!

 

[Sushi]

Let's keep all the discussion and news from the conference on this one thread. In the past, with big events, the coverage has been scattered over several threads and that makes it harder for us brain-fogged people to keep up.

 

[me/cfs 27931]

8 hours, aye carumba, i can't do that on my best day

I ordered a collapsible travel pillow just for the symposium!

Hope none of the presenters take it personally.

 

[Deborah Kavounas]

Isn't it amazing and wonderful that everyone can watch the live streaming and watch the replay at their own pace? Love it and the people making it happen!

My daughter and I will be attending in person and live tweeting for Phoenix Rising, later we will write a few articles. Our initial focus will be on the personal experiences of the people there.

So,

What do you want to know about what’s going on there?

Who would you like to talk to?

What would you ask them if you were there?

If you are attending in person, come and find us. Tell us what it’s like for you. Tell us what you’re thinking.

 

[Murph]

Can I make a request for screenshotting and sharing any good graphics, tables, charts or other visual information? I'm all about that data!

 

[Alvin2]

What would you ask them if you were there?

A general question, not sure who to direct it to, many people with ME/CFS seem to have varied etiologies, how much overlap do they think there is, is it the same condition or several under one umbrella?

I would ask Dr Davis where he expects the research to be 1, 2 and 5 years from now.
Also i would ask him how the recent funding changes affect his lab and what are the chances they will get the money they were writing up the grant for this spring.
I don't know if it would be appropriate to ask Dr Davis these questions directly though.

 

[Deborah Kavounas]

Can I make a request for screenshotting and sharing any good graphics, tables, charts or other visual information? I'm all about that data!

My experience tells me that people will be doing this from home, if not during the live stream, then later, when watching the YouTube video. They will probably also make a transcript of the speeches and everyone will discuss it endlessly, right here, on this thread.

I'd like to do what you can't do from home, to help you have a more personal connection to what's going on there. Talk to people for you. Let you know what they have to say. Ask questions for you.