notmyself
Senior Member
- Messages
- 364
hi everyone , it s been a while since i ve been here..i want to share my experience and maybe give some hope.I want to point out that recovery is possible and i'm the living proof.Please keep that hope in your mind ,cause without it is almost imposible.Things that improve for me in the last few months since i post here:
1.Blood pressure is stable now around 120-70( it used to be high,especially when standing )
2.My standing gentle walking heart rate is around 85( was much higher) and my resting heart rate is 60 or less..
3.The fatigue is better.( but plenty of room for improvement)
4.My gastro intestinal problems are much better .from being bloated or with diarhorea 6 days out of 7 ,i am 2 day from 7 now..
5.pain levels are tha same( never been major for me)
6.the sleep issues come an go..but except last night on wich i sleep just 5 hours i am on a 2 week streak of sleepin 7-8 hours a night without sleeping pills.
7. I still get dizzy and lightheaded plenty of times ,but somehow it doesn t feel that bad latelly,is either i get used with it or is just milder
8.Even tho it doesnt feel comfortable,and i'm pushin hard to do it ,i am able to run!!..i had run more than 100 km in the last 3 months.i had run a 5 km race in 20:30 min wich is actaully a good time for healthy people asweel..The estimated vo2max predicted from this race time is 48..when i tested 4 months ago on a cpet test i tested 32..I also run a 10 k in 47 min few weeks ago, So must definatelly my vo2 max and energy metabolism is higher than used to be!
Very important is to note that after my diagnostic i was close to suicide!And now i m here on the path to healing..KEEP THE HOPE ALIVE !!and rememer that if someone unfortunatelly suffered for years with this disease that doesn t necesarry mean you will be the same ,if depression settles in ,you will not even be able to see the improvements in your health!!
1.Blood pressure is stable now around 120-70( it used to be high,especially when standing )
2.My standing gentle walking heart rate is around 85( was much higher) and my resting heart rate is 60 or less..
3.The fatigue is better.( but plenty of room for improvement)
4.My gastro intestinal problems are much better .from being bloated or with diarhorea 6 days out of 7 ,i am 2 day from 7 now..
5.pain levels are tha same( never been major for me)
6.the sleep issues come an go..but except last night on wich i sleep just 5 hours i am on a 2 week streak of sleepin 7-8 hours a night without sleeping pills.
7. I still get dizzy and lightheaded plenty of times ,but somehow it doesn t feel that bad latelly,is either i get used with it or is just milder
8.Even tho it doesnt feel comfortable,and i'm pushin hard to do it ,i am able to run!!..i had run more than 100 km in the last 3 months.i had run a 5 km race in 20:30 min wich is actaully a good time for healthy people asweel..The estimated vo2max predicted from this race time is 48..when i tested 4 months ago on a cpet test i tested 32..I also run a 10 k in 47 min few weeks ago, So must definatelly my vo2 max and energy metabolism is higher than used to be!
Very important is to note that after my diagnostic i was close to suicide!And now i m here on the path to healing..KEEP THE HOPE ALIVE !!and rememer that if someone unfortunatelly suffered for years with this disease that doesn t necesarry mean you will be the same ,if depression settles in ,you will not even be able to see the improvements in your health!!