Wasn't sure where to post this.
Just been reading thro the BACME guide for severe CFS/ME:
"
6.2 PROM (Patient reported outcome measure)
Since 2006, PROMs used in the majority of adult CFS/ME services in England have been the
Minimum Dataset agreed by the services across England, The baseline measures are
Hospital Anxiety and Depression scale (HADS), Chalder fatigue scale, Pain Visual Analogue
scale, Physical Function SF36, Self Efficacy Scale, EQ-5D, Epworth Sleepiness Scale. All
baseline measure are repeated at follow-up, with the addition of the Clinical Global
Impression of Change. These are used at before treatment (baseline) and at follow-up.
With cessation of National Outcomes Database service, some services are reviewing the
PROMs they use.
Some services reported using additional questionnaires including
- Work and Social Adjustment Scale
- Pittsburgh Sleep Index
Services reported a range of strategies to make it easier for severely affected patients to
complete questionnaires including allowing patients to complete the questionnaires over
several weeks, rather than on the same day and assistance from therapist or carer (for
example, to read out questions and to write down answers).
6.3 CROM (Clinician reported outcome measure)
There is a CROM developed in rehabilitation settings (TOMS : Therapy outcome measure
Therapy Outcome Measures for Rehabilitation Professionals 3rd ed Pam Enderby and
Alexandra John. J&R Press) allows clinicians to describe relative abilities and difficulties
of a patient/client in the four domains of impairment, activity, participation and
wellbeing in order to monitor changes over time. This allows for an assessment of change
in function and role, without significant burden on answering questions on the part of the
patient. It is a measure that can also be used in collaboration with the patient.
There is a new version of TOM specific to patients with CFS/ME in preparation at present."
Anyone know anything about the 'new version',( or even the old version for that matter )?