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Hi,
I have been diagnosed with CFS/PVFS.
I don't know what I can do to help:
I have still a brain fog/headache every minute of everyday over part over the back of my head but also the front and just extreme mental fatigue. Also pains at the top of my neck like my head is really heavy. And pain behind my temples and ringing in my ears. I have the crimson crescents and sore throat every single day of my life for two years now. I also have muscle twitches most days in my face and body.
I have been diagnosed as having shingles and glandular fever in the months proceeding being properly ill with all this.
I don't know what viruses are causing my symptoms - I've tested only positive for Epstein Barr but I'm presuming something else is causing it and the doctors tests aren't sensitive enough to detect presence of maybe the cocksakie b virus? I don't know what I am ever going to do to recover.... I can't go to the doctors and ask for anti virals because they won't give them to me as I'm in the UK. In fact the doctors don't help at all, the only thing they say is there's nothing we can do for you.
What can I do to rid myself of this forever ? I don't want to spend the rest of my life exhausted and out of it.
I'm sorry as I know I've posted before but I don't really know where to start with the generic treatments as I don't know what is actually causing what I have and have had. The other thing I find frustrating is most people who've had glandular fever never had any problems with brain fog, struggling focusing and reading and feeling out of it yet I have. It leads me to question whether I've ever really gotten to the bottom of what's wrong.
Also I tested negative for Lyme disease on the standard test. Tested negative for almost everything.
I'm 21.
Thanks.
I have been diagnosed with CFS/PVFS.
I don't know what I can do to help:
I have still a brain fog/headache every minute of everyday over part over the back of my head but also the front and just extreme mental fatigue. Also pains at the top of my neck like my head is really heavy. And pain behind my temples and ringing in my ears. I have the crimson crescents and sore throat every single day of my life for two years now. I also have muscle twitches most days in my face and body.
I have been diagnosed as having shingles and glandular fever in the months proceeding being properly ill with all this.
I don't know what viruses are causing my symptoms - I've tested only positive for Epstein Barr but I'm presuming something else is causing it and the doctors tests aren't sensitive enough to detect presence of maybe the cocksakie b virus? I don't know what I am ever going to do to recover.... I can't go to the doctors and ask for anti virals because they won't give them to me as I'm in the UK. In fact the doctors don't help at all, the only thing they say is there's nothing we can do for you.
What can I do to rid myself of this forever ? I don't want to spend the rest of my life exhausted and out of it.
I'm sorry as I know I've posted before but I don't really know where to start with the generic treatments as I don't know what is actually causing what I have and have had. The other thing I find frustrating is most people who've had glandular fever never had any problems with brain fog, struggling focusing and reading and feeling out of it yet I have. It leads me to question whether I've ever really gotten to the bottom of what's wrong.
Also I tested negative for Lyme disease on the standard test. Tested negative for almost everything.
I'm 21.
Thanks.
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