AndyPR
Senior Member
- Messages
- 2,516
Latest critique on things PACE related in the Journal of Health Psychology.
One thing that I think is incorrect is "As a result of the serious impact of activity on CFS patients, the Institute recommended renaming post-exertional malaise (PEM) to Systemic Exertion Intolerance Disease (IOM, 2015b: 11)". I believe it should say that the recommendation was for CFS to be renamed, not PEM.
ETA: As Susanna seems to be involved with MEAction Australia, I contacted them to point out the above potential mistake, they said they'd pass the info along.
Full open access at http://journals.sagepub.com/doi/full/10.1177/1359105317715476#.WVNUcV3BB4EChronic fatigue syndrome patients have no reason to accept the PACE trial results: Response to Keith J Petrie and John Weinman
Susanna Agardy
First Published June 27, 2017
Abstract
Petrie and Weinman urge chronic fatigue syndrome patients to move on from their beliefs about their illness and accept the findings of the PACE trial. This is unreasonable in view of the failure of PACE to achieve evidence of recovery through cognitive behaviour therapy and graded exercise therapy in either self-reports or the objective measure of the 6-minute walking test. Contrary to their suggestion, the Institute of Medicine describes chronic fatigue syndrome not as psychological but as a serious, chronic, systemic disease, with post-exertional malaise as its main feature which inhibits exercise. Linking debate about PACE with intimidation of researchers is unjustifiable and damaging to patients.
One thing that I think is incorrect is "As a result of the serious impact of activity on CFS patients, the Institute recommended renaming post-exertional malaise (PEM) to Systemic Exertion Intolerance Disease (IOM, 2015b: 11)". I believe it should say that the recommendation was for CFS to be renamed, not PEM.
ETA: As Susanna seems to be involved with MEAction Australia, I contacted them to point out the above potential mistake, they said they'd pass the info along.
Last edited: