I've had over 19 months of chronic fatigue, crashes after exertion (a trip to a park or jist housework causes one or stress, symptoms of fatigue, aches in legs and upper arms on a crash day, weak burning thighs, dizziness lile im walking in water kind of swimmy head, and nausea. My gp last year was pretty useless and branded me depressed. One time he blamed a virus when i didn't have one it was a typical crash for me.
I had 2 full blood count last year, blood film, glandular fever, nuclear antibodies, kidney and liver function, glucose, Lyme disease, cortisol, crp, bone profile, creatine kinase, hba1c, b12, folate, ferritin... I also had thyroid issues since 2015 which are being treated and within range now. Gp ran the latest sweep of tests as long as my arm 7 months ago and still didn't diagnose me. Branded me.depressed.
My gp leaves this week and I'm being handed over to someone else. He asked me to write a letter explaining exactly how i feel daily and the extent of my crashes and how I feel. So I wrote a 4 page letter detailing exactly how I feel every day and how as a wife and mother at 37 it's impacted my life greatly. Yes I've become depressed but purely due to the situation . Crashes rule my life and I'm afraid to do anything. Living life just to get through each day best I can so my kids are fed and the minimum housework is done. I'm lucky to hit 3000 steps a day as I rest when the children are in school.
Today he rang me out of the blue about the letter. We discussed it and he wanted me to discuss daily how I feel and how a craah feels so I did again and he said 'right ok. I still think depression is a big cause of this but it could be chronic fatigue from reading your letter explaining it in detail.'. He then said bur he wanted to rule our more sinister things which set my anxiety racing. I had 2 full blood xounts in march and april this yewe whuxh shoeed my neutrophils were 0.2 under range and lymphocytes 0.8 over range. He referred me to a haemotologist who wants to check the blood himself the first week in July to do a blood film and check the 2 cells out of range himself. Today I asked my gp could this mean cancer and he said it was for the haemotoglist to rule our anything but he was sure it would be ok at my figures. I had out if range neutrophils years ago She to bad acne and my gp back then just monitored me and said it was due to my acne and never referred me. My current gp panics over everything and makes me an anxious wreck.
I've had to repeat my sodium 5 times since November after it was slightly under on one test bur repeated 9 days later and very good result came back. Yet since then he's made me repeat it every couple of months. He's made me do 3 hba1cs in 7 months yet they always come back normal at 34. He makes me keep repeating things that really aren't an issue. It's exhausting having constant tests and getting no answers.
Today he said he wanted to repeat all the tests again. Every single test he did 7 months ago. Why??? They were all fine. Glandular fever, etc... He even said hba1c and sodium again which were literally done in the last 2 months. I can understand the haemotologist wanting to check the 2 white cells but why is my gp repeating things constant that don't need repeating. It makes no sense. I asked him if I repeat them do I then get a diagnosis of cfs? He said no they'd then refer me to a general medical doctor who would run the same tests and then decide.
I tried to explain to him I've developed a serious blood test phobia. I've also developed anxiety and agoraphobia since being this ill and I am sick of being a pin cushion with no answers as to why I'm poorly. So I refused even more bloods for now as they've all been done time and time again in the last year and other than the fbc the haemotologist wants to double check surely everything else is plenty up to date and no need at all to keep testing and not giving me answers.
I'm now worried sick it's something more sinister after his call but also worried will I have to go through all of this starting again with a new gp as of next week
Did you have to go through all of this and who diagnosed you?
Sorry this got long. I'm so upset after today's call.
Julie
I had 2 full blood count last year, blood film, glandular fever, nuclear antibodies, kidney and liver function, glucose, Lyme disease, cortisol, crp, bone profile, creatine kinase, hba1c, b12, folate, ferritin... I also had thyroid issues since 2015 which are being treated and within range now. Gp ran the latest sweep of tests as long as my arm 7 months ago and still didn't diagnose me. Branded me.depressed.
My gp leaves this week and I'm being handed over to someone else. He asked me to write a letter explaining exactly how i feel daily and the extent of my crashes and how I feel. So I wrote a 4 page letter detailing exactly how I feel every day and how as a wife and mother at 37 it's impacted my life greatly. Yes I've become depressed but purely due to the situation . Crashes rule my life and I'm afraid to do anything. Living life just to get through each day best I can so my kids are fed and the minimum housework is done. I'm lucky to hit 3000 steps a day as I rest when the children are in school.
Today he rang me out of the blue about the letter. We discussed it and he wanted me to discuss daily how I feel and how a craah feels so I did again and he said 'right ok. I still think depression is a big cause of this but it could be chronic fatigue from reading your letter explaining it in detail.'. He then said bur he wanted to rule our more sinister things which set my anxiety racing. I had 2 full blood xounts in march and april this yewe whuxh shoeed my neutrophils were 0.2 under range and lymphocytes 0.8 over range. He referred me to a haemotologist who wants to check the blood himself the first week in July to do a blood film and check the 2 cells out of range himself. Today I asked my gp could this mean cancer and he said it was for the haemotoglist to rule our anything but he was sure it would be ok at my figures. I had out if range neutrophils years ago She to bad acne and my gp back then just monitored me and said it was due to my acne and never referred me. My current gp panics over everything and makes me an anxious wreck.
I've had to repeat my sodium 5 times since November after it was slightly under on one test bur repeated 9 days later and very good result came back. Yet since then he's made me repeat it every couple of months. He's made me do 3 hba1cs in 7 months yet they always come back normal at 34. He makes me keep repeating things that really aren't an issue. It's exhausting having constant tests and getting no answers.
Today he said he wanted to repeat all the tests again. Every single test he did 7 months ago. Why??? They were all fine. Glandular fever, etc... He even said hba1c and sodium again which were literally done in the last 2 months. I can understand the haemotologist wanting to check the 2 white cells but why is my gp repeating things constant that don't need repeating. It makes no sense. I asked him if I repeat them do I then get a diagnosis of cfs? He said no they'd then refer me to a general medical doctor who would run the same tests and then decide.
I tried to explain to him I've developed a serious blood test phobia. I've also developed anxiety and agoraphobia since being this ill and I am sick of being a pin cushion with no answers as to why I'm poorly. So I refused even more bloods for now as they've all been done time and time again in the last year and other than the fbc the haemotologist wants to double check surely everything else is plenty up to date and no need at all to keep testing and not giving me answers.
I'm now worried sick it's something more sinister after his call but also worried will I have to go through all of this starting again with a new gp as of next week
Did you have to go through all of this and who diagnosed you?
Sorry this got long. I'm so upset after today's call.
Julie