this is a post I made at the other thread with her name.
if you look at how the immune HDL2 is talked about there could be many things that set it off.. once on it does NOT turn off.
I just read an article this wk stating mold was the cause of cfs mcs...
here it is if anyone wants to read it
https://blog.bulletproof.com/how-your-house-can-make-you-weak/
Some lab tests here
http://www.survivingmold.com/diagnosis/lab-tests
including how genetics is involved
"HLA DR - Your Genes
Human Leukocyte Antigens (HLAs), are found on the surface of nearly every cell in the human body. They help the immune system tell the difference between body tissue and foreign substances.
The immune response genes are found on chromosome six. Patients could have two alleles, copies of genes (for each gene, one allele is inherited from a person's father, and the other is inherited from a person's mother), out of approximately 10 possible, as part of their genotype. Based on Dr. Shoemaker's data, in normal populations compared to international registries of gene frequencies of HLA DR, we know the frequency of mold illness-susceptible patients approximates 24% of the normally distributed population. Almost a quarter of the normal population is genetically susceptible to chronic mold illness. Three quarters isn't."
I cannot as of yet get my head around much that is genetic tho I blew the cash on 23 and me..... so this is for you people who can.
all the test about mold and this at the link above
another site about toxic mold tests
http://paradigmchange.me/diagnosis/
I did read all this a few days ago and I can't tell you what it is about although at the time I thought it was quite possible and did mean to go back and read this
https://selfhacked.com/blog/c4a/
I forgot about it... so did not read it and would never have looked if I did not see this post.
She is better that is good she wrote a book laying out or pain for the world a world we no longer fit into... one I miss greatly. A few touchy painful spots just in this thread... explaining or not explaining to others why you can't get up... or faking it when you can get up...
worse still the disappointment you see in the eyes of people who love you when they look and see again... the can't.... when all they want is can.....
letting down everyone and everything.. and the avoidance the neglect by medicine... ya it touches some of those things and I for one know it all too well...
maybe we don't have it in our face spelled out and maybe some of us are strong enough or have not looked closely at this yet... I have and I know I won't be reading this books because I know for me this lack of help/treatment and the looking the las 30 years in the face... that is more than I can do. Again...just now.
Still I hope it is an eye opener for some who never heard of cfs... and who knows if mold turns out to be the main cause and we all get cured who cares how we found it not me...