Kati
Patient in training
- Messages
- 5,497
Good afternoon.
The next CFSAC meeting will be held on June 29th and 30th. It will be a webinar. The dialing information will be posted on the CFSAC website in the upcoming days.
The Pediatric Education Workgroup will be reporting to CFSAC on the work they have been doing thus far. The Working Group would like to hear from the public regarding the following:
1. Are there any tasks would you like to see the Workgroup focus on in the future? If not, do you have any suggestions for future workgroups?
2. In your experiences what are the greatest challenges for children suffering from ME/CFS in dealing with the school system?
3. If you have the appropriate experiences, please indicate your opinion as to whether or not the level of knowledge and cooperation between schools and children suffering from ME/CFS improved or deteriorated over the past several years?
4. Do you have a story to share about a student suffering from ME/CFS who has been successful in continuing his/her education (that sharing would promote the success of other students with ME/CFS attempting to continue their education despite being disabled with ME/CFS?
If you would like to speak to the Committee and Work Group members on the issues above, please email the CFSAC inbox. Five minutes speaking opportunities will be granted on a first come first serve basis.
The CFSAC Support Team
Email: cfsac@hhs.gov
Website: http://www.hhs.gov/ash/advisory-committees/cfsac/index.html
Sign up for the CFSAC listserv to receive the latest updates about CFSAC:http://www.hhs.gov/advcomcfs/cfsac_email_list.html
The next CFSAC meeting will be held on June 29th and 30th. It will be a webinar. The dialing information will be posted on the CFSAC website in the upcoming days.
The Pediatric Education Workgroup will be reporting to CFSAC on the work they have been doing thus far. The Working Group would like to hear from the public regarding the following:
1. Are there any tasks would you like to see the Workgroup focus on in the future? If not, do you have any suggestions for future workgroups?
2. In your experiences what are the greatest challenges for children suffering from ME/CFS in dealing with the school system?
3. If you have the appropriate experiences, please indicate your opinion as to whether or not the level of knowledge and cooperation between schools and children suffering from ME/CFS improved or deteriorated over the past several years?
4. Do you have a story to share about a student suffering from ME/CFS who has been successful in continuing his/her education (that sharing would promote the success of other students with ME/CFS attempting to continue their education despite being disabled with ME/CFS?
If you would like to speak to the Committee and Work Group members on the issues above, please email the CFSAC inbox. Five minutes speaking opportunities will be granted on a first come first serve basis.
The CFSAC Support Team
Email: cfsac@hhs.gov
Website: http://www.hhs.gov/ash/advisory-committees/cfsac/index.html
Sign up for the CFSAC listserv to receive the latest updates about CFSAC:http://www.hhs.gov/advcomcfs/cfsac_email_list.html
