Gingergrrl
Senior Member
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I would suggest that you need a test for double stranded DNA antibodies as well as ENA
Would this test ever have a different name in other countries or would it always be called "double stranded DNA antibodies"?
An ANA titre of 1:640 is unusual other than in lupus
Does an ANA titer of 1:160 mean anything or usually ignored? I did not realize that a titer of 1:640 usually indicated Lupus and had thought that it could fit with other autoimmune illnesses, too. Thank you and that is good to know.
Shortness of breath is a common symptom of lupus and lupus like illnesses and should be checked out with formal respiratory function tests. In lupus a restrictive defect is usual
That is interesting and I showed restrictive deficits on formal pulmonary function tests for several years and the first time I have gotten a (still bad) but passing score was after ten months of IVIG.
An ana cannot be put down to ME/CFS per se or to an over active immune reaction - that does not happen; it is a specific immune dysregulation. Occasionally no cause is found, but not often.
This was my feeling as well and that there is some underlying cause even if it is due to more obscure autoantibodies that doctors are not familiar with.
@Omar88 I hope the ER/doctors can figure out your case soon and you will get some relief. Thank you for sharing your story and please keep us posted.