Always thirsty and peeing loads

[Alex1]

Like as soon as I drink my mouth still feels incredibly dry, but I still pee it out soon after (often the urine looks just like water). Bear in mind, I have other cfs symptoms too, including fatigue, stiff-feeling neck, diarrheoa, weird gut noises, headaches, tinnitus.
Is this thirst problem serious? It feels really bad. What could it mean? Any treatments/cures?

Note I do not pee at night.

 

[ryan31337]

Hi @Alex1,

You need to see a doctor about this in case its something like onset of diabetes.

Your issue may be completely different but I had the symptoms you mentioned, my urine volume was up to about 6-8L per day. Always thirsty, especially so on bad days and after exertion/large meals. My fasting glucose was always normal so GP's were stumped.

Later on specialists identified POTS, reactive hypoglycemia & low aldosterone. Since treating those I'm down to about 4L per day and doing a lot better.

Ryan

 

[Mary]

Like as soon as I drink my mouth still feels incredibly dry, but I still pee it out soon after (often the urine looks just like water). Bear in mind, I have other cfs symptoms too, including fatigue, stiff-feeling neck, diarrheoa, weird gut noises, headaches, tinnitus.
Is this thirst problem serious? It feels really bad. What could it mean? Any treatments/cures?

Note I do not pee at night.

Those can be symptoms of type 2 diabetes - see http://www.webmd.com/diabetes/type-2-diabetes-guide/diabetes-warning-signs

 

[Alex1]

Hi @Alex1,

You need to see a doctor about this in case its something like onset of diabetes.

Your issue may be completely different but I had the symptoms you mentioned, my urine volume was up to about 6-8L per day. Always thirsty, especially so on bad days and after exertion/large meals. My fasting glucose was always normal so GP's were stumped.

Later on specialists identified POTS, reactive hypoglycemia & low aldosterone. Since treating those I'm down to about 4L per day and doing a lot better.

Ryan

Forgot to mention, I've had the fatigue for months but the thirst and frequent urination for only a few days.

 

[MeSci]

Like as soon as I drink my mouth still feels incredibly dry, but I still pee it out soon after (often the urine looks just like water). Bear in mind, I have other cfs symptoms too, including fatigue, stiff-feeling neck, diarrheoa, weird gut noises, headaches, tinnitus.
Is this thirst problem serious? It feels really bad. What could it mean? Any treatments/cures?

Note I do not pee at night.

Passing lots of urine is called polyuria. I have it too, and it's quite common in ME. You may need to take desmopressin, or it may have another cause. Have a look for threads about polyuria. Also measure how much urine you're producing compared with how much you're drinking.

 

[Alex1]

Passing lots of urine is called polyuria. I have it too, and it's quite common in ME. You may need to take desmopressin, or it may have another cause. Have a look for threads about polyuria. Also measure how much urine you're producing compared with how much you're drinking.

Okay, and should I still drink a lot as my thirst encourages me? I am wary of the dangers of drinking too much water...

 

[TigerLilea]

Like as soon as I drink my mouth still feels incredibly dry, but I still pee it out soon after (often the urine looks just like water). Bear in mind, I have other cfs symptoms too, including fatigue, stiff-feeling neck, diarrheoa, weird gut noises, headaches, tinnitus.
Is this thirst problem serious? It feels really bad. What could it mean? Any treatments/cures?

Note I do not pee at night.

You definitely need to get this checked out by your doctor as it could possibly be diabetes. You don't want to end up in a diabetic coma. Other symptoms include headaches, falling asleep, losing weight even though you haven't cut back on food, blurred vision; some of which you are complaining of having.

 

[Wonko]

Okay, and should I still drink a lot as my thirst encourages me? I am wary of the dangers of drinking too much water...

Depending on body weight a healthy adult (with ready access to a toilet LOL) can safely drink up to 12 litres a day - the dangers of water poisoning occur when you drink too much too fast e.g. 6 liters in 20 minutes, I looked into this a few years ago when I was consuming 8-9 litres every night. Of course if you are drinking excessively you should get checked out and may need to take supplements to maintain your electrolyte levels.
The fact you are not urinating at night would suggest to me that it isn't diabetes, but your thirst would suggest it is - so dunno - go see a doctor.

edit......of course, if you are thirsty you should drink, but keep tabs on how much, and if you consider it excessive then go see a doctor (a lot of people believe the hype that says about 2 liters a day is "normal", it's not, many people need at least double this and more if it's hot or if they are on a restrictive diet).

edit 2.....drink plain water!! - coffee, tea, soft drinks, fruit juice, squash (even no added sugar stuff) - all should be avoided if you're having issues due to sugar, fake sugar (which apart from the calories has pretty much the same effect on blood sugar levels) and diuretic properties etc.

 

[NelliePledge]

Me too I've had my blood tests back and I'm pre diabetic. I'm overweight so have to seriously tackle my diet to shed some weight and hopefully bring my sugar down. It is definitely worth getting checked

 

[satori]

Had the same problem and it improved significantly after I discovered I had elevated mycotoxins and started treatment.

 

[MeSci]

Okay, and should I still drink a lot as my thirst encourages me? I am wary of the dangers of drinking too much water...

Do you drink/eat a lot of sodium/salt? You may need more if not. But get it checked out. Doctors may not know much about this - check out the threads about polyuria and sodium.

 

[Alex1]

Do you drink/eat a lot of sodium/salt? You may need more if not. But get it checked out. Doctors may not know much about this - check out the threads about polyuria and sodium.

I think I have just under a teaspoon of salt a day. I know specifics are difficult but how much would be ideal considering my problem. Should I have more than the recommended amount?

 

[MeSci]

I think I have just under a teaspoon of salt a day. I know specifics are difficult but how much would be ideal considering my problem. Should I have more than the recommended amount?

Sorry but I can't be specific, and I'm not at all well. It will depend on what food you eat. Try looking up the subjects I suggested.

You may need more than the recommended amount. You could see how quickly you burp after having some sodium bicarbonate in water. If it takes 5 minutes or more, I would say you need more, but don't take my word for it.

(Changed 'salt' to 'sodium bicarbonate'.)

 

[LaurelW]

Do you drink/eat a lot of sodium/salt? You may need more if not. But get it checked out. Doctors may not know much about this - check out the threads about polyuria and sodium.

I had this problem years ago. I was eating very little salt because everything I read said that people eat too much salt. The problem went away when I started eating more salt. I had a couple friends that went through the same thing.

 

[BellaSC]

Like as soon as I drink my mouth still feels incredibly dry, but I still pee it out soon after (often the urine looks just like water). Bear in mind, I have other cfs symptoms too, including fatigue, stiff-feeling neck, diarrheoa, weird gut noises, headaches, tinnitus.
Is this thirst problem serious? It feels really bad. What could it mean? Any treatments/cures?

Note I do not pee at night.

Hi Alex....I also have ME and had similiar thirst issues for quite some time.
No matter how much water I consumed I felt thirsty.
I was checked for diabetes and fortunately that's not a cause.
Could it be that you're consuming too much salt ?? I know that salt really seems to affect me.

A friend recommended alkaline water instead of regular water. That changed everything for me.
Now I feel satisfied without drinking excessive amounts of water and no longer constantly thirsty.
Your body may need the alkalinity or more electrolytes.

 

[Mcarunnie]

Had the same problem and it improved significantly after I discovered I had elevated mycotoxins and started treatment.

Hi
I have same issue and tired of it. How did you get diagnosed for it? I also suspect my yeast infection is causing this

 

[Mcarunnie]

I

Like as soon as I drink my mouth still feels incredibly dry, but I still pee it out soon after (often the urine looks just like water). Bear in mind, I have other cfs symptoms too, including fatigue, stiff-feeling neck, diarrheoa, weird gut noises, headaches, tinnitus.
Is this thirst problem serious? It feels really bad. What could it mean? Any treatments/cures?

Note I do not pee at night.

have same issue and is it better now

 

[Mcarunnie]

Had the same problem and it improved significantly after I discovered I had elevated mycotoxins and started treatment.

I have same issue. How did you resolve this?

 

[Jennifer J]

Hi, @Mcarunnie and @Alex1.

I can't write much on this now. There's info on the site you can search or perhaps others can say more. Another possibility, I know several of us with ME/CFS have diabetes insipidus. It's different than diabetes of the blood. It's of the pituitary gland.

I don't know that most doctors check for this cause it's considered very rare (at least that's what my doctor said).

Anyways desmopressin is one thing that is used to treat it. Need to see a doctor. Preferably an endocrinologist?

Desmopressin has helped a lot with mine. I have problems with dehydration when it's not under control. Though you really need to monitor your sodium levels with desmo cause it drops them which can become dangerously low. Also figure out what dose and how much water works to prevent that cause it's all tied in and affected by each other.

Whatever is causing DI (diabetes inspidus) can go away if you have an underlying infection that is causing it and you treat that. Possibly can go away when other things are fixed tooo.

I hope you're able to get this checked out and feel better. Best to you.

P.S. I just noticed @Alex1 you posted this over a year ago. I hope you're doing better.

 

[satori]

I have same issue. How did you resolve this?

Chitosan, chlorophyll, apple pectin, cholagogues, increasing glutathione, cutting out moldy foods (mostly corn for me, but also storing bread properly).