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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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New Documentary: What About ME 2017

RogerBlack

Senior Member
Messages
902
One concerning thing, I've only glanced occasionally at it - not got the energy - 1:23:21 - in the text at the end.
"The latest reports from the lancet psychiatry headed by Dr Michail Sharpe are claiming that CBT and GET are good for patients health".
It's possible that the viewer that's watched this in depth may understand that this is incorrect - I have not done so.

I guess this was:

http://forums.phoenixrising.me/inde...me-long-term-follow-up-from-pace-trial.40817/


The bits I did watch seemed positive though.
 

Seven7

Seven
Messages
3,444
Location
USA
Can we as a community get this files declassified, if we know the origin of ME maybe we can move faster. I don't understand what is the legal basis for the seal. We should pursue this.
 

RogerBlack

Senior Member
Messages
902
Can we as a community get this files declassified, if we know the origin of ME maybe we can move faster. I don't understand what is the legal basis for the seal. We should pursue this.

I have not yet watched it. However, my understanding is the 'secret' files referred to have been declassified, and were not especially interesting, other than as politics of the time. They did not illustrate in any way the pathology of CFS/ME.

See also http://forums.phoenixrising.me/inde...algic-encephalomyelitis-me.50022/#post-825773
 

Seven7

Seven
Messages
3,444
Location
USA
I have not yet watched it. However, my understanding is the 'secret' files referred to have been declassified, and were not especially interesting.
Is what I thought too but if it is not common to close files for longer than 30 years why 70+ for this file., I think we should pursue it.
 
Messages
32
I'm on Prime and am in Northern Ireland.

I got the message below :(

"Service Area Restriction

This video isn't available due to geographical licensing restrictions. For more details, please refer to Amazon Video Terms of Use. For further assistance, please contact Amazon Customer Service at www.amazon.com/videohelp and refer to error 4601. "

If you download and use the 'Opera' browser, it has a built in VPN, which you can set to US.