Information sought on situation in the UK for protest

[Tom Kindlon]

I thought I would crowd-source a reply to these questions.

Hi Tom,

I am helping organize the London #MillionsMissing protest on May 12th and we are currently on the hunt for some statistics for our leaflets. I thought you might be a good person to ask

Do you have any info about: funding for ME in the UK compared to other diseases, the economic burden of having this proportion of the population out of work, the prevalence of ME in children, any data on severe ME sufferers, deaths, suicides..

Any help would be much appreciated!

If for some reason you don't want is post your reply here, you can direct message me.

 

[Robert 1973]

The cost to the UK economy is estimated to be at least £8.5 billion per annum:

1. Bibby J, Kershaw A. How much is M.E. costing the country? Report prepared by the Survey & Statistical Research Centre. Sheffield Hallam University, 2006. [Estimated annual cost at £6.4 billion in 2006.]

2. £6.4 billion in 2006 equates to £8.5 billion in 2016 using the Bank of England Inflation Calculator: http://www.bankofengland.co.uk/education/Pages/resources/inflationtools/calculator/default.asp

There is some data about funding in the CMRC report, although it it important to note that most of the reported UK funding for ME/CFS has been for non-biomedical research (White &a Crawley):
http://www.meresearch.org.uk/wp-content/uploads/2016/09/mecfs-research-funding-report-2016-final.pdf

 

[MEMum]

See also
Info needed on prevalence rates/research funded re ME versus MS, AIDS...please

This thread has some useful replies as well

 

[Tom Kindlon]

See also
Info needed on prevalence rates/research funded re ME versus MS, AIDS...please

This thread has some useful replies as well

Okay that is:
http://forums.phoenixrising.me/inde...rch-funded-re-me-versus-ms-aids-please.50948/