Kenjie
Senior Member
- Messages
- 208
- Location
- New Zealand
2015 overcame Chronic fatigue. I've had my abundance of health issues and gotten through some hard ailments but this one tops the cake..
Since December 2016... I got infections in December but after they cleared I still hasn't 'come right'... I started to experience lightheadedness.. Hot flushes.. Dizziness.. Lifting anything would bring on a spell... It didn't come on suddenly.. It came on gradually and got worse over time...Ive experienced loss of appetite... Feeling if being I'll and my heart rate goes up and down... Low blood pressure... Feeling off balance when walking...or like being on a boat and having to walk slow to steady myself..pace myself.. I've had near fainting spells several times over last 5 months but haven't fainted yet.. I'd get hot then it would get worse from.there.. I find it hard to cool off when get hot...
I've changed doctor couple times cos none have given me answers.. Current doctor has put me on metroprolol beta blocker without knowing the cause of my symptoms.. He believes I'll get better over time on beta blockers and that I won't be on them for life.. My concern is these tablets are a bandaid effect...
I've been to an ent.. Had a ct scan on forehead ... And I've seen a neurologist who only said he thought pots but he did not confirm anything . now I'm on waiting list to see a specialist at hospital but that won't happen for 3-4 months...
I'm at my wits end after 5 months of feeling so unwell.. Sometimes I get upset and cry out of sheer frustration.. I feel like I've been chasing doctors for answers.. Paid ALOT of money in hopes of getting to the bottom of it and still to no avail..
I'm constantly on Google researching remedies .. Vitamins.. Symptoms.. Possibilities of diagnosis.. As well as specialists I could see that might help..
I do have hypothyroidism but levels always come back normal as I'm on tablets for that for life. I've heard that pots can tie in with hypothyroid... Although sometimes I wish it was as simple as just having a really bad sinusitis so I can treat the cause and it will all go away... And even though I have debris (mucus) appear on my ct scan no one has been concerned...
I do experience ongoing pressure in forehead as well as headaches and pressure on and behind the eyes.. I've had an eye check up and they told me I have enlarged blood vessels in my eyes ..again no one is concerned about this either..
I also get sweaty hands sometimes when hot .. My feet have been sweaty on one occasion..
Last couple weeks I've been taking vitamin b12 and bit D.. Which seem to curb the low blood pressure or on a boat feeling but again I'm concerned it will just mask the symptoms rather than get to root cause...
I'm determined to overcome whatever this is somehow.. Any help or advice or useful information would be most appreciated please.. Also can you please tell me who is the pots specialist in nz? Or a cardiologist in nz who knows a lot about pots and autonomic dysfunction?
Since December 2016... I got infections in December but after they cleared I still hasn't 'come right'... I started to experience lightheadedness.. Hot flushes.. Dizziness.. Lifting anything would bring on a spell... It didn't come on suddenly.. It came on gradually and got worse over time...Ive experienced loss of appetite... Feeling if being I'll and my heart rate goes up and down... Low blood pressure... Feeling off balance when walking...or like being on a boat and having to walk slow to steady myself..pace myself.. I've had near fainting spells several times over last 5 months but haven't fainted yet.. I'd get hot then it would get worse from.there.. I find it hard to cool off when get hot...
I've changed doctor couple times cos none have given me answers.. Current doctor has put me on metroprolol beta blocker without knowing the cause of my symptoms.. He believes I'll get better over time on beta blockers and that I won't be on them for life.. My concern is these tablets are a bandaid effect...
I've been to an ent.. Had a ct scan on forehead ... And I've seen a neurologist who only said he thought pots but he did not confirm anything . now I'm on waiting list to see a specialist at hospital but that won't happen for 3-4 months...
I'm at my wits end after 5 months of feeling so unwell.. Sometimes I get upset and cry out of sheer frustration.. I feel like I've been chasing doctors for answers.. Paid ALOT of money in hopes of getting to the bottom of it and still to no avail..
I'm constantly on Google researching remedies .. Vitamins.. Symptoms.. Possibilities of diagnosis.. As well as specialists I could see that might help..
I do have hypothyroidism but levels always come back normal as I'm on tablets for that for life. I've heard that pots can tie in with hypothyroid... Although sometimes I wish it was as simple as just having a really bad sinusitis so I can treat the cause and it will all go away... And even though I have debris (mucus) appear on my ct scan no one has been concerned...
I do experience ongoing pressure in forehead as well as headaches and pressure on and behind the eyes.. I've had an eye check up and they told me I have enlarged blood vessels in my eyes ..again no one is concerned about this either..
I also get sweaty hands sometimes when hot .. My feet have been sweaty on one occasion..
Last couple weeks I've been taking vitamin b12 and bit D.. Which seem to curb the low blood pressure or on a boat feeling but again I'm concerned it will just mask the symptoms rather than get to root cause...
I'm determined to overcome whatever this is somehow.. Any help or advice or useful information would be most appreciated please.. Also can you please tell me who is the pots specialist in nz? Or a cardiologist in nz who knows a lot about pots and autonomic dysfunction?