@Hip Mast cell disorders can include anaphylaxis to smells:
http://www.mastattack.org/2014/11/fragrance-allergy/
http://www.mastattack.org/2014/11/fragrance-allergy/
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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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@Hip Mast cell disorders can include anaphylaxis to smells:
http://www.mastattack.org/2014/11/fragrance-allergy/
• Borrelia, Mycoplasma pneumoniae, Aspergillus and Staphylococcus delta toxin are known to activate mast cells. So addressing any infections or co-infections with these pathogens (that are treatable) may reduce MCAS symptoms. Mycoplasma pneumoniae co-infection is sometimes found in ME/CFS, and can be treated with antibiotics.
the place i am waiting to get into that has a 2 year waiting list
Yes it was plain old amoxicillin 500mg for 7 days both times this drug stopped the jerking.
it is really about a movement disorder I acquired after .. that is caused by a reaction to chemicals best i can sort... when i get in chemicals i cannot walk jerk head to toe... along with a long list of other things... this is a bad one thinking throat closing are the other two worst reactions...
for me mcs seems to cause a movement disorder once I am set off I can jerk for a wk or more...
Movement disorders caused by mcs ... have you heard of it do you have it...?
akathisia I can't spell it and can't waste too much energy on it .... it is worse... bad worse than all this as a lot of people don't survive it... internal insanity no peace at all.
Prednisone at only 5mg caused me severe suicidal ideation. I cant take it as I get borderline psychotic - cant eat as food seems disgusting. Last time I had to have a course for my lungs I couldn't even watch other people eat as it made me think they were disgusting for eating I lost a lot of weight. Im sure these werid reactions are all part of my MCAS.I did not want to take prednisone as it causes my brain to shut down....