Dechi
Senior Member
- Messages
- 1,454
Hello,
My GP, who knows nothing about ME, wants me to see an internal medicine doctor. This doctor will most probably know nothing about ME either. He or she works at the same clinic as my GP. I have seen an internal medicine doctor last year, and he refuted everything I wanted to be tested for and said he treated cancer and could do nothing for me... The reason why I am going to this internal doctor is more of a courtoisy and to maintain a good relationship with my GP. He is all I have close to me right now, my specialist is many hours away.
Since then I have had a formal diagnosis of ME following a SPECT scan that showed moderate to severe hypoperfusion to many areas of the brain. I was also thoroughly tested for orthostatic intolerance by a soecialist and tested negative (the spect scan concurred with that finding).
The ME specialist who diagnosed me is having me do a gastric biopsy to find traces of enterovirus or other viral infection. He thinks I might have enterovirus 68. I am still awaiting for an appointment to be made for me, so not much is moving in that department for now.
Can an internal medicine doctor help me find out what I was infected with ? Are there specific tests that I should ask for to help with that matter, or any other one ?
Since I have a diagnosis, finding out what infected me will help is meant to help me find treatment to relieve some of my symptoms.
Do you have any advice to share ? Thanks !
My GP, who knows nothing about ME, wants me to see an internal medicine doctor. This doctor will most probably know nothing about ME either. He or she works at the same clinic as my GP. I have seen an internal medicine doctor last year, and he refuted everything I wanted to be tested for and said he treated cancer and could do nothing for me... The reason why I am going to this internal doctor is more of a courtoisy and to maintain a good relationship with my GP. He is all I have close to me right now, my specialist is many hours away.
Since then I have had a formal diagnosis of ME following a SPECT scan that showed moderate to severe hypoperfusion to many areas of the brain. I was also thoroughly tested for orthostatic intolerance by a soecialist and tested negative (the spect scan concurred with that finding).
The ME specialist who diagnosed me is having me do a gastric biopsy to find traces of enterovirus or other viral infection. He thinks I might have enterovirus 68. I am still awaiting for an appointment to be made for me, so not much is moving in that department for now.
Can an internal medicine doctor help me find out what I was infected with ? Are there specific tests that I should ask for to help with that matter, or any other one ?
Since I have a diagnosis, finding out what infected me will help is meant to help me find treatment to relieve some of my symptoms.
Do you have any advice to share ? Thanks !