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#MEAction petition: Stop GET trials, stop MAGENTA ("PACE for children") ***UK deadline 12th March***

Jenny TipsforME

Jenny TipsforME

Senior Member
Messages
1,184
Location
Bristol
That's great. I wonder if people are using methods other than social media? Surprisingly not everyone is on social media. The occasional campaigning email may go down well if you email the right people.

My neighbour just signed after my partner sent the link as a text message.
 
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Barry53

Senior Member
Messages
2,391
Location
UK
Apologies if this has already been done, but is it worth referencing Dr. Davis Q&A where he says there is increasing possibility that "pushing through" the fatigue might well be what is causing and perpetuating ME/CFS. That surely has strong relevance here.
 
A

AndyPR

Senior Member
Messages
2,516
Location
Guiding the lifeboats to safer waters.
Visit http://www.stopget.org/ for the background detail or use the links below to go straight to the petitions.

UK, now at 6,223. 10,000 needed for response from Parliament.
Only a few days left, deadline for signing is 12th March.
https://petition.parliament.uk/petitions/166601
UK citizens, please also sign the global one below.

Global, now at 4,471.
https://my.meaction.net/petitions/stop-graded-exercise-therapy-trials-for-me-cfs

Sign now to stop trials using GET on ME sufferers (especially on children i.e. MAGENTA
 
A

AndyPR

Senior Member
Messages
2,516
Location
Guiding the lifeboats to safer waters.
Visit http://www.stopget.org/ for the background detail or use the links below to go straight to the petitions.

UK, now at 6,606. 10,000 needed for response from Parliament.
Only one day left, deadline for signing is 12th March.
https://petition.parliament.uk/petitions/166601
UK citizens, please also sign the global one below.

Global, now at 4,476.
https://my.meaction.net/petitions/stop-graded-exercise-therapy-trials-for-me-cfs

Sign now to stop trials using GET on ME sufferers (especially on children i.e. MAGENTA
 
A

AndyPR

Senior Member
Messages
2,516
Location
Guiding the lifeboats to safer waters.
Last day to be able to sign the UK petition.

Visit http://www.stopget.org/ for the background detail or use the links below to go straight to the petitions.

UK, now at 6,960. 10,000 needed for response from Parliament.

https://petition.parliament.uk/petitions/166601
UK citizens, please also sign the global one below.

Global, now at 4,478.
https://my.meaction.net/petitions/stop-graded-exercise-therapy-trials-for-me-cfs

Sign now to stop trials using GET on ME sufferers (especially on children i.e. MAGENTA
 
H

Hajnalka

Senior Member
Messages
910
Location
Germany
It's so sad that all ME petitions (except for Mary Gelpi's) have extremely low signature numbers, when we're supposed to be 17 million pwme worldwide. We should be able to reach any goal with this number of people! Guess one huge problem is, that over 80 % are undiagnosed. Millions of people are missing from petitions and advocacy because they have no idea what's wrong with them or that ME exists. I had no idea for 14 years until last summer. :hug:
 
JaimeS

JaimeS

Senior Member
Messages
3,408
Location
Silicon Valley, CA
The site is down -- total coincidence, I'm sure(!) -- so it's even more important that we campaign personally. If you haven't yet tweeted, posted to Facebook, sent out emails to friends, now is the time ladies and gents.

Here is the link: https://petition.parliament.uk/petitions/166601

We're around 7,500, so we just need 2,500 more. Since Jenny's announcement that it was the last few days, we've gotten about 1,000 signatures a day. If we really push, I feel like we can do this. I know it's hard to invest time when we don't know whether or not there will be payoff.

I honestly do think it's rather ominous that the site suddenly won't load on my computer so that strangers can't see/find/hear our point of view, but I'm hopeful that it's just my computer? :cautious:

Jaime
 
JaimeS

JaimeS

Senior Member
Messages
3,408
Location
Silicon Valley, CA
Sorry, @AndyPR, I meant the site stopget.org -- the thing that actually contains stories from real patients, looks professional, and presents our point of view to the outside world. Without that link working, all we have to convince people is the very short blurb attached to the petition itself.

I'm not a conspiracy theorist, but I find it very odd that the site suddenly won't load at this point, on the very last day. It loaded yesterday. If someone else can access stopget.org, I'd know it was just my computer or browser being odd.

Jaime
 
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AndyPR

Senior Member
Messages
2,516
Location
Guiding the lifeboats to safer waters.
JaimeS said:
Sorry, @AndyPR, I meant the site stopget.org -- the thing that actually contains stories from real patients, looks professional, and presents our point of view to the outside world. Without that link working, all we have to convince people is the very short blurb attached to the petition itself.

I'm not a conspiracy theorist, but I find it very odd that the site suddenly won't load at this point, on the very last day. It loaded yesterday. If someone else can access stopget.org, I'd know it was just my computer or browser being odd.

Jaime
Click to expand...
Oh, I see.

Just checked stopget.org, it was slow to load but it did eventually.
 
JaimeS

JaimeS

Senior Member
Messages
3,408
Location
Silicon Valley, CA
AndyPR said:
Oh, I see.

Just checked stopget.org, it was slow to load but it did eventually.
Click to expand...

Maybe just a lot of people are looking. that would be awesome. <3

[Edit]: Mine still won't ... wait, it finally loaded. That took about 3 min. Not sure what's wrong....

Oh, nope -- it loaded with this message: "
Error establishing a database connection"
]
 
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