@Lucy1996 sorry to hear of your ongoing headache. I've had migraines from 4 year old but after the virus I had a non stop migraine for 2 years 24/7 with projectile vomitting. Also bedbound and parslysed with the ME.
Nothing touched the pain so i had no painkillers for years. I was awake 3 days in a row as sleep was impossible so i just had to wait for exhaustion to overide the agony to knock me out, then i'd sleep for a couple of days on and off and then back to being awake for days. Even when i did manage to sleep, the pain was in my dreams too and had horrific constant nightmares. Because i was in darkness day and night, it was just one long torture-fest never knowing if it was morning or night, with a constant battle to maintain sanity.
The only thing i found to eventually break the cycle was Syndol, which was paracetamol, codeine, caffeine and doxylamine succinate. They only worked when crushed into a powder and taken with a mouthful of fizzy coke to heighten the caffeine and these only worked after the first 2 years (before this nothing touched it)
The relief the first time this happened after trying everything else was indescribable. Those tablets saved my life.
They've now been stopped but can still be bought from south africa in an emergency but they cost £40 for a box of 10. I made my box last a year or so, using them only when it was horrific again.
I have to make do with a powdered paracetamol and codeine mix now, it works enough but 20 years later... I still have the ongoing migraine but i get a few hours reprieve here and there because of the tablets.
I also still buy the doxylamine succinate part of the drug from america and use it before bed. Its a muscle relaxant, anti-histamine and sold as a sleep aid. Its called 'kirklands sleep aid' its the only thing that has enabled me to sleep during night times and enabled me to have a vaguely normal bedtime at around 2am even when my brain is screaming.
The only other drug i've found that enables a break in the non-stop cycle is epilum. An epilespsy drug. But the side effects are way too much to take daily. They do work as a one off here and there to put a break in the pain and give some breathing space.
These are the only 2 things that have had any effect on me and i've tried everything in the last 35 years from hypnosis when i was 8, atlas chiro corrections that had no effect, to an exorcism when i was 24! (It was offered to me, i didn't go looking for it lol and for the record left me screaming in agony for days afterwards) The migraine really didn't like it!
The only thing i'm still waiting to do is a daith ear piercing but i think this is specifically for one sided migraine so might not be of use for you.
I really hope you find that magic bullet or combination punch to get at yours and immobilize it, even if just enough to give you a breather and allow you to gain control even temporarily.
Even just getting a few hours reprieve can be enough to give you the strength to chip away at it and gain some ground. Once it gets a hold again and digs its claws in, its all the more difficult to start loosening its grip again.
I talk about it like its a living entity. It definitely feels that way sometimes :thumbdown: mine no longer has power over me the way it once did but i'm always keeping it at arms length and it never stops trying.
Its chained to a wall at the back of my brain somewhere always waiting to pounce
I hope you get some relief soon. There might be things you've tried that haven't worked in the last 18 months but those same things might work a little later down the road so its worth repeating some ideas/drugs at different intervals. Hang in there, things will improve in time
