Can't I take any medicine for Tachycardia?

[Nemesis]

Hi everyone
I have pots with vasomotor instability, I took Propranolol, sotalol, Bisoprolol, verapamil, for my tachycardia at low dosage, all of it caused me blood vessels dilation and hypotension, my doctor said that I can't take any tachycardia medication as it will dilate my blood vessels and cause hypotension, I take Midodrine fir hypotension and fludrocortisone, I can't stand tachycardia and heart Palpitations can't sleep well because of it, so what just nothing I can take or do for Tachycardia or is there anything can help
Thanks

 

[Snowdrop]

Hi @Nemesis

Many here find it hard to deal with drugs. So many of us have POTS and some have found relief by taking a good quality Magnesium such as Mg malate or Mg glycinate. Over time if you take Mg you might find that you need to supplement the other electrolytes, potassium in particular.

 

[Nemesis]

Hi @Nemesis

Many here find it hard to deal with drugs. So many of us have POTS and some have found relief by taking a good quality Magnesium such as Mg malate or Mg glycinate. Over time if you take Mg you might find that you need to supplement the other electrolytes, potassium in particular.

I take vitamins, is that will stop Palpitations?

 

[Nemesis]

http://www.pharmaguide.org/geriatric-pharmaton.html

 

[Nemesis]

Ingredient Strength
Standardized Ginseng Extract G115 40mg
Dimethyleaminoethanol bitartrate 26mg
Vitamin A 4000IU
Vitamin B1 2mg
Vitamin B2 2mg
Vitamin B6 1mg
Vitamin B12 1mcg
Vitamin C 60mg
Vitamin D 400IU
Vitamin E 10mg
Nicotinamide 15mg
Calcium Pantothenate 10mg
Rutine 20mg
Iron 10mg
Calcium 90.3mg
Phosphorus 70mg
Fluorine 0.2mg
Copper 1mg
Potassium 8mg
Manganese 1mg
Magnesium 10mg
Zinc 1mg
Lecithin 66mg

 

[Snowdrop]

There is no one sure answer to many issues around ME and POTS that work for everybody. So You might want to look around on various threads dealing with the subject and try a few things. It's worth noting that some people have reported that somethings seem to encourage tachycardia -- vitamin B12 (methylcobalamin) is one such.

The type of magnesium matters. Mg is poorly absorbed in the body. The Mg in your supplement is probably Mg oxide the cheapest and least absorbed. With illness you may want to try targeted solutions. But nothing so far is a cure.

You could have a look here to find other opinions: http://forums.phoenixrising.me/index.php?threads/somethings-making-me-feel-better.34183/

 

[Valentijn]

@Nemesis - If your tachycardia is due to low blood pressure or low pulse pressure, POTS meds probably aren't going to help. But there are treatments for types of Orthostatic Intolerance other than POTS, which might be worth looking into.

 

[Jan]

I take Bisoprolol, but usually only a tiny dose, half of the lowest strength, 1.25mg I think. If I'm really stressed I take more, but either way I usually only take it just before bed. I seem to be ok if I stick to this, but I haven't actually checked if my bp is ok. Like you I can't sleep with palpitations, it's horrible, I'm lucky that such a tiny dose usually stops it for me.

 

[Seven7]

I take all 3. Propanalol, midodrine + florinef ( I am on break of florinef for now).

 

[Nemesis]

Dr Frank j pearl suggested that I ask doctor about Ivabradine

 

[ja21ne]

Ivabradine is amazing. I take 2.5mg for tachycardia. My blood pressure is always on the low side and I couldn't tolerate a beta blocker because of that. 2.5 mg ivabradine is a very small dose. Angina patients on it would be taking considerably more I believe.

i do need to keep well hydrated. I take the drug with quite a lot of water to build blood volume, in the morning.
The ivabradine works quite quickly and it takes my heart rate just below my aerobic threshold. This means I can stand and walk more easily, preventing deconditioning which would make the tachycardia worse. I have been on it around 2 years and it has really improved my quality of life.

The only side effect is a slight flash of light in my eye, noticeable if I wake at night and move my eye sideways. I reduces over time and doesn't seem to affect the retina. It is such a slight side effect for such a huge gain, for me it isn't worth worrying about. It is reversible when no longer taking the drug.

I am in the UK. My POTS came on when my ME started to improve.

Hope this is helpful. Definitely worth looking into,ivabradine if you can, as it does not reduce blood pressure.

 

[Nemesis]

Thanks you all I love this site it very helpful and supportive
I live in Egypt my country is not familiar with this disease nor there are any specialist, so I rely heavily on electronic consulting beside my Cardiologist thanks all

 

[kangaSue]

What meds will work for you depends on what causes your POTS, there are a number of overlapping pathophysiologies, including an autonomic neuropathy in the lower body, hypovolemia, elevated sympathetic tone, mast cell activation, deconditioning, and autoantibodies.

Some studies have found that plasma renin activity and aldosterone tended to be higher in patients with CFS. Can't say I've seen it mentioned in the literature but if the Renin-Angiotensin system is the issue, maybe something like olmesartan (Benicar) that some with ME/CFS are finding beneficial might help with POTS not responsive to other meds.

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4059278/
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4664448/

 

[Sushi]

I rely heavily on electronic consulting beside my Cardiologist thanks all

You might ask your cardiologist also about other types of drugs that could prevent tachycardia. I don't know if you have electrophysiologists in Egypt, but they are cardiologists who specialize in heart rhythm and may know more about the range of medications available. I see an electophysiologist with good results.

 

[Nemesis]

You might ask your cardiologist also about other types of drugs that could prevent tachycardia. I don't know if you have electrophysiologists in Egypt, but they are cardiologists who specialize in heart rhythm and may know more about the range of medications available. I see an electophysiologist with good results.

Yes but my main problem is low blood pressure due to blood vessels dilation, yes I see Cardiologist

 

[Nemesis]

So how to delete the thread?

 

[Snowdrop]

You might also find something useful in this information: http://www.dysautonomiainternational.org/page.php?ID=34

 

[Mary]

@Nemesis - your palpitations might be due to low potassium. Low potassium can also cause insomnia. A simple way to find out is to eat or drink some high potassium foods/juices (e.g., low-sodium V8, a vegetable/tomato juice), is very high in potassium and see if it helps. I have to drink V8 daily plus take a potassium supplement (potassium gluconate, around 800 mg a day in divided doses)

And my potassium was always in the low-normal range on blood work.

Low potassium is very common in people with ME/CFS. Also, it can be brought on by taking folate and/or B12 if someone is deficient in them.

But I would not try just one glass of vegie juice - I would do several throughout the day and see if you feel better and if you do, then I would look very closely at potassium issues. There are a lot of threads on the board about this.

 

[Sushi]

Yes but my main problem is low blood pressure due to blood vessels dilation, yes I see Cardiologist

But how about an electrophysiologist? They specialize in heart rhythms and treating them. I was seeing a general cardiologist and switched to an EP who has been much more helpful with her knowledge of the ins and outs of low blood pressure and tachycardia.

So how to delete the thread?

Only moderators can delete threads. Please contact either me or Kina and we can discuss it.

 

[Grigor]

Yes but my main problem is low blood pressure due to blood vessels dilation, yes I see Cardiologist

You might want to look into Mestinon. I slows down the heart rate. But ups the blood pressure. Not like Midodrine though. But could be a gold one for you to try.

http://www.healthrising.org/blog/20...nic-fatigue-vagus-nerve-stimulation-exercise/