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Questions about PACE will not be answered.
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Questions about PACE will not be answered.
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Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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It said they'll be back at 3pm I think. 45 minutes left?
The person running the "chat" left a comment saying it. Not sure what the point of the chat is though, since patients can't have their comments or questions passed on to the speakers.Oh! Where did it say that? The agenda had the next thing on at 2 pm.
YeahStill off air?
Action4ME 4:31 PMHello and welcome back to the Action for M.E. livestream. In order to keep on schedule we will not be passing questons from lovestream chat on to the panel of speakers and will only be taking questions from people in the room. If you have a question that needs answering you can contact our Information and Support Officers by emailing admin@<censored> or our CEO Sonya Chowdhury by emailing sonya@<censored> Thank you.
Okay, that was 15 minutes of AfME telling us how awesome they are, interspersed with generic power point drivel.
Quite agree, what it will mean is Crawley and co, via SC and AFME having even more influence internationally.I am worried that AfME are spreading their wings trying to garner international / UN clout when they can't even get the basics right.
This could be disastrous, it's bad enough them having a say in the UK, we dont want them influencing things abroad too.