Sidney
Senior Member
- Messages
- 146
- Location
- East Sussex, U.K.
Note: This thread was split from an earlier thread.
Does anyone have a respectable, not too long, not too scientific, description of CFS, that could be printed and given to friends, therapists (physio, dentists, etc). Just to give an accurate idea of what it is actually like.
People tend to say "oh, I wish I could be in bed all day", or " I'm sure I have CFS, I want to take naps all the time", or "Rest up, then you'll be able to go out tomorrow "... Etc. Total misunderstanding, but how do you explain?
A different name would help, but the med profession doesn't seem to be able to settle on one.
I feel that a one page medical info sheet might be helpful.
I am so sick of saying 'fine' when asked how I am, when my mind is begging to a crash to alleviate a bit, for this meeting to be over so I can get home somehow, and back to bed.
There is probably such a thing somewhere on this site, but I haven't been able to find it! Any pointers appreciated!
Does anyone have a respectable, not too long, not too scientific, description of CFS, that could be printed and given to friends, therapists (physio, dentists, etc). Just to give an accurate idea of what it is actually like.
People tend to say "oh, I wish I could be in bed all day", or " I'm sure I have CFS, I want to take naps all the time", or "Rest up, then you'll be able to go out tomorrow "... Etc. Total misunderstanding, but how do you explain?
A different name would help, but the med profession doesn't seem to be able to settle on one.
I feel that a one page medical info sheet might be helpful.
I am so sick of saying 'fine' when asked how I am, when my mind is begging to a crash to alleviate a bit, for this meeting to be over so I can get home somehow, and back to bed.
There is probably such a thing somewhere on this site, but I haven't been able to find it! Any pointers appreciated!
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