Solve ME/CFS Initiative: Patient Perspectives Vital in Shaping ME/CFS Research

[AndyPR]

SMCI Research Advisory Council and Board of Directors meeting participants, pictured left to right, back to front: Michel Silvestri, PhD, Sweden; Sheila Stewart, PhD, WashU; Vicky Whittemore, PhD, NIH (guest); Natalie Block, MD, MPA, Mount Auburn; SMCI President Carol Head; John Nicols; Beth Garfield; Fred Friedberg; Vicky Boies, Aaron Paas; Diane Bean; Cindy Bateman, MD, Bateman Horne Center; Sue Levine, MD, CFSAC; Anthony Komaroff, MD, Harvard; Rick Sprout; Michael Atherton; SMCI Vice President for Research and Scientific Programs Zaher Nahle, PhD, MPA; Jose Montoya, MD, Stanford; Peter Rowe, MD, Johns Hopkins Medical Center; not pictured: Andy Kogelnik, MD, PhD, Open Medicine Institute.

Patient Perspectives Vital in Shaping ME/CFS Research
In last week’s issue of Research 1st, we highlighted a recent, full-day meeting of the SMCI Research Advisory Council (RAC) held in the DC area. Within that piece, we detailed presentations and remarks from key thought leaders in ME/CFS research, including Drs. Komaroff, Montoya, Kogelnik, Levine, Rowe, and Bateman.

That productive day was filled with fruitful discussions and candid exchanges on how to move the ME/CFS research field forward. Numerous avenues of collaboration were established, and ongoing efforts for partnerships and cross-pollination through the SMCI network were strengthened to create value on behalf of patients.

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[slysaint]

Don't suppose you could send the link to Prof Steven Holgate?

 

[trishrhymes]

Don't suppose you could send the link to Prof Steven Holgate?

He probably thinks he's ticked that box by involving AFME and AYME. He may not be aware of the problem in this. Didn't I read somewhere that he consulted Wessley for advice on which CFS 'experts' to involve?