Hotch
Hotch
- Messages
- 43
- Location
- Sydney nosw Australia
hi everyone,
Just thought I would alert you to the possibility of Hemochromatosis (iron overload). It is a pretty common genetic disorder. My CFS has been going downhill the last 2/3 years. I was diagnosed with Hemochromatosis 6 months ago. I read up on it and thought I was in the beginning phase so I had the venesection and didn't think too much about it after that. A couple of months later my exhaustion amongst other things got progressively worse and very quickly. It didn't cross my mind that Hemochromatosis could be doing this. However, when I had my next venesection (3 months later than I should have) I improved almost immediately!
For the 2/3 years I just automatically thought it was the CFS that was getting worse. I just want others to know that sometimes it can be other things totally unrelated toCFS that can be playing a part. To be tested for hemochromotosis it is a simple blood test and it is free (at least it is in Australia). You could just ask your dr to add it onto the next blood test list. If found early hemochromatosis is fine. However if left it can do a lot of damage and can be fatal. I hope this helps someone be tested early rather than go through a few years suffering extra from an easily treated disorder. Cheers to all, Hotch
Just thought I would alert you to the possibility of Hemochromatosis (iron overload). It is a pretty common genetic disorder. My CFS has been going downhill the last 2/3 years. I was diagnosed with Hemochromatosis 6 months ago. I read up on it and thought I was in the beginning phase so I had the venesection and didn't think too much about it after that. A couple of months later my exhaustion amongst other things got progressively worse and very quickly. It didn't cross my mind that Hemochromatosis could be doing this. However, when I had my next venesection (3 months later than I should have) I improved almost immediately!
For the 2/3 years I just automatically thought it was the CFS that was getting worse. I just want others to know that sometimes it can be other things totally unrelated toCFS that can be playing a part. To be tested for hemochromotosis it is a simple blood test and it is free (at least it is in Australia). You could just ask your dr to add it onto the next blood test list. If found early hemochromatosis is fine. However if left it can do a lot of damage and can be fatal. I hope this helps someone be tested early rather than go through a few years suffering extra from an easily treated disorder. Cheers to all, Hotch