Hi!
1. I've been trying to find some information on this as it was already noted, it's not a high priority on the dr's list and not a lot of info out there. Wondering if any fellow CFIDS folks have experienced this.
I developed something that looked like a geographic tongue after one of my viral reactivation episodes (when my Immune system was low). The tongue has continued for 3 years now, but it actually hurts. It looks like my taste buds are inflamed on certain sections of my tongue and I get these weird shapes with a white outer lining on top on my tongue what looks like a geographic tongue. Plus, cracks and other weird changes appear from time to time. It will change day by day, sometimes get worse depending on the how my immune system is fighting the viral load or not. It will also get irritated with spice and with rough textured foods, like pretzels if it is irritated.
I had an ENT take one quick look and say, Oh Yeah, this is a geographic tongue. But, I thought they weren't supposed to hurt at all? I can't seem to find a dr' that can help me figure this out, but I know it has to be related to the viruses.
2. I started getting mouth sores that come and go for 10 months now...but not like a canker sore. They never develop into an ulcer and all inside of mouth, not outside. I don't have cold sores. Red small circles and some larger spread out patches that look whiter in the middle and only on the inner parts of mouth like surrounding my teeth, not on my tongue. Some red spots remind me of hand foot mouth sores photos, but I've had the coxsackie for 4 years now, so why do they show up in the last year even after being on equillibrant herbal remedy?
Viral Load:
EBV
Coxsackie A
HHV6
Wanted to know if anyone else has these issues with the tongue hurting and or the sores if you have EBV and or Coxsackie. Looking for any research or evidence or treatment of any of these viruses showing symptoms on tongue and in the mouth. I've heard of hairy leukoplakia for EBV, but my issue doesn't resemble this.
1. I've been trying to find some information on this as it was already noted, it's not a high priority on the dr's list and not a lot of info out there. Wondering if any fellow CFIDS folks have experienced this.
I developed something that looked like a geographic tongue after one of my viral reactivation episodes (when my Immune system was low). The tongue has continued for 3 years now, but it actually hurts. It looks like my taste buds are inflamed on certain sections of my tongue and I get these weird shapes with a white outer lining on top on my tongue what looks like a geographic tongue. Plus, cracks and other weird changes appear from time to time. It will change day by day, sometimes get worse depending on the how my immune system is fighting the viral load or not. It will also get irritated with spice and with rough textured foods, like pretzels if it is irritated.
I had an ENT take one quick look and say, Oh Yeah, this is a geographic tongue. But, I thought they weren't supposed to hurt at all? I can't seem to find a dr' that can help me figure this out, but I know it has to be related to the viruses.
2. I started getting mouth sores that come and go for 10 months now...but not like a canker sore. They never develop into an ulcer and all inside of mouth, not outside. I don't have cold sores. Red small circles and some larger spread out patches that look whiter in the middle and only on the inner parts of mouth like surrounding my teeth, not on my tongue. Some red spots remind me of hand foot mouth sores photos, but I've had the coxsackie for 4 years now, so why do they show up in the last year even after being on equillibrant herbal remedy?
Viral Load:
EBV
Coxsackie A
HHV6
Wanted to know if anyone else has these issues with the tongue hurting and or the sores if you have EBV and or Coxsackie. Looking for any research or evidence or treatment of any of these viruses showing symptoms on tongue and in the mouth. I've heard of hairy leukoplakia for EBV, but my issue doesn't resemble this.