I've never heard of Anglia ME action. I've just glanced through their website to see what's there, and it looks like someone has put a lot of work into collating info. on the political aspects of ME in the UK. It's kind of disconcerting not being given any idea of who is behind it, but then a lot of bloggers use pseudonyms I guess. The name suggests it's a group rather than an individual.
While I heartily agree that we need a peer reviewed journal article of the type described, I can't see how simply expressing a wish for something to happen will make it happen. I think I understand that Mathees, Kindlon et al are putting together a more detailed analysis of the PACE data aiming for publication. I must admit I'm pinning my hopes on that.
I don't like to sound critical, it looks like a splendid website, I just wonder whether it will be able to exert any influence, and if so, who it's trying to influence - politicians won't read it. The headline suggests they are asking us ('the ME community') to act. From what I've seen people are trying hard to make effective protests and to inform politicians. I'm not sure what more can be done, given how ill we all are.
