RogerBlack
Senior Member
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The several forums I found googling seem to be mostly or entirely moribund. Has everyone moved here?
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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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The several forums I found googling seem to be mostly or entirely moribund. Has everyone moved here?
There are 3 UK ME forums that I know of, and actually I belong to all 3 and am a moderator of one (very inactive so it's hardly a problem but I used to help on there with benefits issues at one time). However I would agree that none are anywhere near as active as PR or as well informed in terms of research.
That said, I did used to find the other forums supportive and for some years I steered clear of PR for the reason that it scared me stiff as everyone on here seemed to be operating at such a high level scientifically and I didn't feel that I could compete. I do think that PR has become a bit more user friendly over the years though so I come on here a lot more often.
I see you've just joined recently. Welcome! Although I'm from the US, I can assure you that there are many discussions here that are UK-specific. They relate to things like finding a good doctor, support group, the politics of medicine in the UK, the Department of Work and Pensions, the SMC, etc.The several forums I found googling seem to be mostly or entirely moribund. Has everyone moved here?
It suddenly occurs to me that there are a lot of folks around here from south west UK... Cornwall, Devon, Dorset... what about Somerset?
Interesting... carry on folks!