Simmaron’s Fifth Anniversary Event Updates ME/CFS Community on Dynamic Research Underway

[halcyon]

Simmaron recently held a patient update session with its Scientific Advisory Board and key collaborators in Incline Village, Nevada. The event celebrated the Simmaron Research Foundation’s fifth year anniversary. I don’t know if anyone would have predicted five years ago that patients would be hearing from the likes of Mady Hornig, Maureen Hanson, Konstance Knox and Elizabeth Unger but here they were in little Incline Village talking about their work.

http://simmaronresearch.com/2016/09...ary-chronic-fatigue-syndrome-research-update/

 

[Cheesus]

http://simmaronresearch.com/2016/09...ary-chronic-fatigue-syndrome-research-update/

This is really exciting. I am particularly intrigued by the distinction between typical and atypical patients, as I definitely fall into the latter category. I wonder if atypical patients are distinct from one another or if they are relatively homogenous.

Hopefully we will find out soon!

 

[Riley]

I am definitely in the atypical category as well.

 

[halcyon]

That part was a little confusing. Dr. Peterson appears to be using the atypical moniker differently than it's been used previously, e.g. in the ME ICC where an atypical patient is one that has PEM but not enough of the other required symptoms to qualify for diagnosis. Peterson's atypical patient seems to be those at the extreme severe end or those with gross detectable abnormalities.