Hi Pinkheaven, I'm sorry to hear that you have no support from family/friends. I found that showing some loved ones the spoon theory helped them understand better (
www.butyoudontlooksick.com) - it also might help you understand yourself a bit more.
I'm not much help on the treatments front, as I haven't had too much success in finding someone to treat me with more than just vitamin injections. However, I do have a few lifestyle suggestions that help me function in everyday activities.
1. Recently bought a shower stool. Best investment ever. Especially since you also have the POTS symptoms. Showering can be hard and when I was sicker, I sometimes didn't shower every day purely because it was so exhausting. Sitting on the floor is not great (germs, big issue for girls especially) but this stool has been wonderful at letting me shower without needing a half hour recovery rest afterwards.
2. Some kind of activity monitor. I have an Apple Watch which monitors activity levels and gives the amount of kJ/calories used per day, and you can view your levels over the days/weeks/months via your phone. This gives me an objective view of how well/poor I'm going overall. Also, it has a heart rate monitor - if you can't afford something like the Apple Watch, it can be worth it to find a cheap heart rate monitor so you can identify which symptoms are POTS related. I've found I can better identify the POTS symptoms now, which allows me to alter what I'm doing sooner, rather than try to power through and then make myself worse.
3. Timers and alarms. I keep my phone handy as I go from room to room throughout the day, mostly so I don't need to get up for it. I use alarms to remind me to take my tablets (brain fog ensures I don't remember always) and I use the snooze button until I actually get up to go do it, otherwise I'll forget. I also sometimes use timers in order to pace myself and ensure I'm not overdoing it. It also helps to feel like you've achieved something - if you can do 5 mins of tidying up your day's mess, or even just 2 mins, you've done something productive without overdoing it like we are often prone to do.
4. I use water bottles to ensure I always have enough water handy, as I don't like getting up if I feel bad. It's also a handy measure to ensure you drink enough in the day. I aim for 4 x 600mL bottles. With POTS, it's best to ensure you are always well hydrated.
5. Avoid temperature extremes. Being in Ireland, I assume heat isn't too much of an issue lol but you should definitely try to avoid becoming too cold. When you get cold, your body needs to work harder to keep your temperature up. When we have such limited energy resources, we don't want to waste them on maintaining body temperature when we can make sure we're always rugged up in the cold.
6. Have easy to prepare meals. We use frozen meals a lot, Aldi has some delicious and cheap ones. 2 minute noodles if you need, pasta packs, frozen pizzas or other frozen meals you can just pop in the oven. We have an air fryer and almost exclusively use that now, as it's much faster. I also like to keep easy snacks handy like muesli bars, as sometimes I just need to eat something immediately. Sometimes I'll just eat a tin of baked beans or even just plain bread if I'm too tired to put anything on it. Easy to prepare stuff isn't always the most nutritious (and nutrition is important for us all) but sometimes, it's just too hard to prepare anything more complex and at least you're getting something.
Those are all I can think of right now, but they are probably the major things I'm currently doing to make my life more manageable.
One really helpful thing I was told was that anyone with chronic illness/injury tends to go through a period of grief. It sounds weird, but it makes sense: we grieve the loss of the life we thought we would lead. So if you have periods of feeling sad, angry, useless, frustrated, or anything like that, it's ok. It's unfair as hell that we have to deal with CFS. It sucks. But everyone has something, no one's life is a fairy tale (as much as they'd like you to believe), and having such a difficult 'something' will make you a stronger, more aware and more thankful person.
I hope that you can eventually find support from your loved ones, as it can be really helpful. The more you learn about your illness, the more equipped you'll be to educate them. Sometimes, no matter how hard you try, they don't understand. But please know that these forums are filled with very understanding and helpful people and even if you don't have the support of loved ones, you always have support of every single person on here. It's not the same, but it's something.