mattie
Senior Member
- Messages
- 363
Hello all,
I'm new here and this is my first thread. Hope I put it in the right place.
Beginning of 2016 I was diagnosed with ME/CFS and POTS. Also suffer from severe sleep disturbance which contributes heavily to my symptoms.
Tried all the OTC options for better sleep, none of them worked for me.
Ambien worked but gave me horrible side effects and severe inter-dose withdrawal.
Benzos work a bit but are definitely no long term solution.
After having a sleep study here in the Netherlands I have been prescribed Amitriptyline 10mg by the neurologist / sleep specialist. She told me this is currently the medication of choice and the most effective medication for staying asleep longer and improving deep sleep cycles.
But... I've also read about some PWME that had serious adverse reactions, even permanent damage.
So:
Have you tried amitriptilyne?
Did it help or not?
How about the side effects?
Besides the poll I would love to hear from your experience with amitriptyline.
My doc says it has really helped about 65% of her patient population.
I would really like to know if this goes for PWME too...
I'm new here and this is my first thread. Hope I put it in the right place.
Beginning of 2016 I was diagnosed with ME/CFS and POTS. Also suffer from severe sleep disturbance which contributes heavily to my symptoms.
Tried all the OTC options for better sleep, none of them worked for me.
Ambien worked but gave me horrible side effects and severe inter-dose withdrawal.
Benzos work a bit but are definitely no long term solution.
After having a sleep study here in the Netherlands I have been prescribed Amitriptyline 10mg by the neurologist / sleep specialist. She told me this is currently the medication of choice and the most effective medication for staying asleep longer and improving deep sleep cycles.
But... I've also read about some PWME that had serious adverse reactions, even permanent damage.
So:
Have you tried amitriptilyne?
Did it help or not?
How about the side effects?
Besides the poll I would love to hear from your experience with amitriptyline.
My doc says it has really helped about 65% of her patient population.
I would really like to know if this goes for PWME too...
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