Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Sorry for the delay, Justin--I had blood volume testing not terribly long after I was diagnosed, and of course the results showed abnormally low levels. I had a course of Epogen around 15 years ago. Very expensive stuff, but I had better insurance at the time. Didn't seem to do anything at all. I don't know of this doing much in ME/CFS, actually, but at the time it seemed like something worth trying.
Autoantibodies? Now you want to know about the newest area of immunology research and so there is no good answer.
The problem with Procrit is that it can cause blood clots.It seems like it would be a great drug on the balance of scales if low blood volume POTS was DXed easier and the patient had low VEGF.
I wish like at @Kati post on Zika virus the NIH would be rigoroulsy testing and repurposing drugs based on what information they have about ME/CFS currently.
The NIH has enough info already it really needs to use this information to come up with some options.
For example if in a study 5 people out of 20 have X, Y, Z markers than find a drug or drugs that can help those 5. Then on to the next batch...etc.
Zika can spread easily which is very concerning but so many millions have ME and/or Lyme that really need effective treatment options.
I am always wandering on the upper limit of normal.