JaimeS
Senior Member
- Messages
- 3,408
- Location
- Silicon Valley, CA
This one is for US citizens, guys.
From : http://www.meaction.net/2016/08/25/urgent-take-part-in-the-us-congressional-call-to-action/
We are proud to announce that U.S. Representatives Zoe Lofgren (CA-19) and Anna Eshoo (CA-18) have agreed to co-sponsor a U.S. House of Representatives letter to National Institutes of Health (NIH) Director Francis Collins. The letter solicits information about the NIH's current and future ME/CFS program and encourages the NIH to strengthen ME/CFS biomedical research efforts (ME/CFS is the Representatives' preferred terminology). The language in the letter was drafted by the two Congresswomen's offices and is therefore not subject to change.
The letter is currently being circulated for additional signatures in the U.S. House of Representatives.
We need your help to add your representative’s signature to the letter. We are running on a deadline of representatives' sign-on due by this coming Wednesday, Aug. 31.
Click here for instructions on what to do to contact your congressperson, step-by-step.
Take Action Now!
_______________________________________
Now, shpeil aside -- this is really amazing work. I can say that because I (beyond meeting with one of my own Congresspersons around the May protests) had absolutely no part in it.
A ridiculously dedicated team has hammered, hammered, and hammered away. I can't even tell you how many meetings were held, the strategy sessions on how to stay in contact without being bothersome, the phone calls and emails. I can tell you I worked extra hard on the article above, and on the document pinned (take action now!) just to do justice in some small way to the people who made this happen.
This isn't quite 'one click advocacy'. However, because of the months of work from the congressional folk at #MEAction, all you have to do is make one call and send one email. We have a script for the call that you can use, and we have the whole email ready to be cut-and-pasted. The Take Action Now includes links to the letter to Dr. Collins to attach in the email as well as a link to a factual one-pager for use in the conversation, so you have all the facts at your fingertips. You might consider attaching it to the email as well, because it serves as a handy reminder to your congressional representative's staffers what it is you're contacting them about and why.
The letter to Dr. Collins itself is excellent, and has some concrete 'asks' for the NIH: the congressional staffers did their homework.
Please take the time and energy required to participate. If there is anything you don't understand in that document, it is my own doing, so hopefully I can help anyone out who gets confused.
We can talk all day long, but if you have some energy to act, I highly recommend doing so. If you don't, please, please consider asking a friend or family member to do so on your behalf. (The script has some provisions for this.)
Don't push yourself into crashing, community, but please don't hesitate if you are okay to act.
I appreciate you all so much, and everything that you continue to do to make an easier life for those future millions who will develop ME, and for your friends and family here today. Thank you. <3
From : http://www.meaction.net/2016/08/25/urgent-take-part-in-the-us-congressional-call-to-action/
We are proud to announce that U.S. Representatives Zoe Lofgren (CA-19) and Anna Eshoo (CA-18) have agreed to co-sponsor a U.S. House of Representatives letter to National Institutes of Health (NIH) Director Francis Collins. The letter solicits information about the NIH's current and future ME/CFS program and encourages the NIH to strengthen ME/CFS biomedical research efforts (ME/CFS is the Representatives' preferred terminology). The language in the letter was drafted by the two Congresswomen's offices and is therefore not subject to change.
The letter is currently being circulated for additional signatures in the U.S. House of Representatives.
We need your help to add your representative’s signature to the letter. We are running on a deadline of representatives' sign-on due by this coming Wednesday, Aug. 31.
Click here for instructions on what to do to contact your congressperson, step-by-step.
Take Action Now!
_______________________________________
Now, shpeil aside -- this is really amazing work. I can say that because I (beyond meeting with one of my own Congresspersons around the May protests) had absolutely no part in it.
A ridiculously dedicated team has hammered, hammered, and hammered away. I can't even tell you how many meetings were held, the strategy sessions on how to stay in contact without being bothersome, the phone calls and emails. I can tell you I worked extra hard on the article above, and on the document pinned (take action now!) just to do justice in some small way to the people who made this happen.
This isn't quite 'one click advocacy'. However, because of the months of work from the congressional folk at #MEAction, all you have to do is make one call and send one email. We have a script for the call that you can use, and we have the whole email ready to be cut-and-pasted. The Take Action Now includes links to the letter to Dr. Collins to attach in the email as well as a link to a factual one-pager for use in the conversation, so you have all the facts at your fingertips. You might consider attaching it to the email as well, because it serves as a handy reminder to your congressional representative's staffers what it is you're contacting them about and why.
The letter to Dr. Collins itself is excellent, and has some concrete 'asks' for the NIH: the congressional staffers did their homework.
Please take the time and energy required to participate. If there is anything you don't understand in that document, it is my own doing, so hopefully I can help anyone out who gets confused.
We can talk all day long, but if you have some energy to act, I highly recommend doing so. If you don't, please, please consider asking a friend or family member to do so on your behalf. (The script has some provisions for this.)
Don't push yourself into crashing, community, but please don't hesitate if you are okay to act.
I appreciate you all so much, and everything that you continue to do to make an easier life for those future millions who will develop ME, and for your friends and family here today. Thank you. <3