I am finally making clear progress after being completely bedridden for around 20 months. During that time I have only stood up a handful of times and I have always immediately fallen back on the bed afterwards. I have not been able to walk at all and I have had to slump onto a commode beside my bed once a day to use the toilet. Otherwise I have been permanently horizontal and in these same four walls without respite.
But two weeks ago I started 0.5mg naltrexone, and things are rapidly changing. I can use the laptop for prolonged periods and sit up for up to 5 minutes at a time. I am much more chipper and my family is commenting on how much better I am. I am able to shift about in bed and sit on the end of my bed briefly.
But my legs are jelly. I daren't try to stand up properly yet as I am concerned I will fall. I am also worried about causing myself PEM and halting my improvement.
What have others who have been in this situation done? Does anyone have any suggestions for rehabilitation when it comes to walking and moving about? I long to use a real toilet haha. I daresay GET is actually what is required... though the type of GET that comes from improvement rather than that which supposedly causes it.
Thoughts?
But two weeks ago I started 0.5mg naltrexone, and things are rapidly changing. I can use the laptop for prolonged periods and sit up for up to 5 minutes at a time. I am much more chipper and my family is commenting on how much better I am. I am able to shift about in bed and sit on the end of my bed briefly.
But my legs are jelly. I daren't try to stand up properly yet as I am concerned I will fall. I am also worried about causing myself PEM and halting my improvement.
What have others who have been in this situation done? Does anyone have any suggestions for rehabilitation when it comes to walking and moving about? I long to use a real toilet haha. I daresay GET is actually what is required... though the type of GET that comes from improvement rather than that which supposedly causes it.
Thoughts?