Old Bones
Senior Member
- Messages
- 808
Just received the following email from Elizabeth May, Green Party leader (and sole Green Party Member of Parliament):
"Thank you for your email about Myalgic Encephalomyelitis and Chronic Fatigue Syndrome (ME/CFS). I find it appalling that in a prosperous country like ours, many chronic diseases afflicting Canadians are still being misdiagnosed or not diagnosed at all. Canadians living with ME/CFS are too often stigmatized and left without the social and economic support they need to meet their unique needs.
I support your call for stronger research, health, and social infrastructure to support Canadians living with ME/CFS. The fact that ME/CFS is poorly understood contributes to a lack of treatment and care options for those living with the illnesses. Moreover, a general lack of public awareness has contributed to the unfair stigma associated with these conditions, which, in turn, makes it more difficult for people living with ME/CFS to access the accommodation they are entitled to.
For these reasons, I agree that improved funding and research, health care delivery, and public awareness that respects the realities and needs of Canadians living with ME/CFS is needed.
I will work with the federal government to see if it can build a framework with the provinces and the medical community to ensure that general practitioners are properly equipped, and that there are enough specialists to provide appropriate treatment to Canadians with ME/CFS.
With stronger support for improved research, health, and social outcomes, the federal government can ensure that Canadians living with ME/CFS are treated with understanding, justice and equity.
Thank you again for writing.
Sincerely,
Elizabeth May, O.C., M.P.
Saanich-Gulf Islands
Leader of the Green Party of Canada"
Not one of the governing Liberal MP's responded to the #MillionsMissing emails sent from our household. Considering the positive response @Kati received from her opposition MP today, perhaps this is where we should be focusing our advocacy efforts.
"Thank you for your email about Myalgic Encephalomyelitis and Chronic Fatigue Syndrome (ME/CFS). I find it appalling that in a prosperous country like ours, many chronic diseases afflicting Canadians are still being misdiagnosed or not diagnosed at all. Canadians living with ME/CFS are too often stigmatized and left without the social and economic support they need to meet their unique needs.
I support your call for stronger research, health, and social infrastructure to support Canadians living with ME/CFS. The fact that ME/CFS is poorly understood contributes to a lack of treatment and care options for those living with the illnesses. Moreover, a general lack of public awareness has contributed to the unfair stigma associated with these conditions, which, in turn, makes it more difficult for people living with ME/CFS to access the accommodation they are entitled to.
For these reasons, I agree that improved funding and research, health care delivery, and public awareness that respects the realities and needs of Canadians living with ME/CFS is needed.
I will work with the federal government to see if it can build a framework with the provinces and the medical community to ensure that general practitioners are properly equipped, and that there are enough specialists to provide appropriate treatment to Canadians with ME/CFS.
With stronger support for improved research, health, and social outcomes, the federal government can ensure that Canadians living with ME/CFS are treated with understanding, justice and equity.
Thank you again for writing.
Sincerely,
Elizabeth May, O.C., M.P.
Saanich-Gulf Islands
Leader of the Green Party of Canada"
Not one of the governing Liberal MP's responded to the #MillionsMissing emails sent from our household. Considering the positive response @Kati received from her opposition MP today, perhaps this is where we should be focusing our advocacy efforts.