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Today: Videocast of NIH Council Meeting to authorise major ME/CFS funding - Thursday 26 May 2pm EDT

Bob

Senior Member
Messages
16,455
Location
England (south coast)
Today!
Thursday 26th May 2016 - 2pm EDT (7pm London).

Videocast of NINDS (NIH) Council Meeting to authorise major ME/CFS funding & research initiatives.


Live video should be available here:
https://videocast.nih.gov/

The video will be archived and made available.

Full agenda of meeting:
http://www.ninds.nih.gov/find_people/nands/council_agenda_may_2016.htm

----------------------------------------

The Future is Almost Here: NIH Proposal To Move ME/CFS Research Forward Unveiled on the 26th

Cort Johnson
http://www.healthrising.org/forums/...s-research-forward-unveiled-on-the-26th.4403/

The Trans-NIH Working Group - a group of Institute representatives working on ME/CFS - will present their proposal to move chronic fatigue research forward during an open session of National Advisory Neurological Disorders and Stroke Council. You can watch it LIVE on May 26th at 2pm (I assume that's EST). (It will be archived as well.)

Thursday, May 26th at 2pm
https://videocast.nih.gov/

NINDS said:
To: "Emr, Marian (NIH/NINDS) [E]" <emrm@ninds.nih.gov>
Sent: Wednesday, May 18, 2016 10:52 AM

Subject:
NINDS Council Meeting - May 26, 2016

As you know, the Trans-NIH ME/CFS Working Group is considering several initiatives to advance research on ME/CFS. In order to move forward, funding initiatives require approval by an Institute’s advisory council, which reviews grant applications and advises leadership on activities and policies affecting scientific programs.

On May 26, 2016 at 2:00 P.M., the Working Group’s proposal for ME/CFS will be presented during the open session of the National Advisory Neurological Disorders and Stroke Council. A copy of the Council meeting agenda is attached.

To watch the meeting live, please visit https://videocast.nih.gov on the day of the meeting. The recording will also be archived and available for future viewing.

Let me know if you have any questions.
Regards,
Marian

Marian Emr

Director, Office of Communications and Public Liaison/NINDS
 
Last edited:

dreampop

Senior Member
Messages
296
What's the minimum acceptable amount from the working group's proposal (given that its unlikely all of it will be accepted by the institutes)?

Also, wasn't CFS moved into the Neurological Institute therefore eliminating the trans institute working group?
 

charles shepherd

Senior Member
Messages
2,239
Videocast scrutiny later today of major US federally-funded ME/CFS research initiative | 26 May 2016

National Institute of Neurological Disorders and Stroke

Agenda for meetings on Thursday 26th May and Friday 27th May:

http://www.ninds.nih.gov/find_people/nands/council_agenda_may_2016.htm

The particular item of interest in relation to ME/CFS is on Thursday 26th (7 PM UK time):

2:00 p.m. VIII. Concept Clearance for Proposed Initiative ME/CFS Research =
Consortium

Dr. Vicky Whittemore, Program Director, Channels, Synapses & Circuits, =
Cluster, NINDS

The videocast website is: http://videocast.nih.gov/.=20

The meeting on the 26th is open until 2:45;

The 27th is closed.


Dr Charles Shepherd
Hon Medical Adviser MEA
 
Last edited:

Sasha

Fine, thank you
Messages
17,863
Location
UK
@charles shepherd - I wonder if you or the mods would like to change the title of this thread to the one on your MEA page (below)? I think it would help draw attention to this. :)

Videocast scrutiny later today of major US federally-funded ME/CFS research initiative | 26 May 2016
 

LiveAgain

Senior Member
Messages
103
I don't see anything about ME/CFS when clicking on that link. What do we do once we get onto the page?
 

Kati

Patient in training
Messages
5,497
I don't see anything about ME/CFS when clicking on that link. What do we do once we get onto the page?
It starts in 10 minutes. Look for the NINDS webcast, it is a 2 days meeting and dr Whittemore's talk.(the first one on top)