valentinelynx
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I am wondering if anyone has the experience to help me make this decision.
I am strongly considering seeing Dr De MeirLeir, as he appears to have the most experience successfully treating both ME/CFS and chronic intracellular infections, e.g. Lyme disease et al. My diagnosis is currently ambiguous - the Lyme tests are inconclusive, but my clinical presentation is highly suggestive: I had tick bites in an endemic area (SF Bay Area hills), a rash, and subsequent sudden onset of flu-like illness with hand stiffness and many other symptoms. So, I would like to see a doctor who is well versed in both ME/CFS and Lyme-type illness, and De Meirleir seems to be the best.
I have been seeing some good people: Dr Yang in San Diego, and Dr Kaufman in Mt View, California. However, I'm not seeing any improvement in my condition yet. Perhaps I am too impatient, as it's been less than a year with both of these doctors. However, I don't want to waste any more time...
My intent is to finally, after being ill for 23 years, to pull out all the stops to try to get better, as things have been very bad lately, and I am afraid of losing my ability to work. Currently, I work part-time, for a few days at at a time, and it sets me back for a week or more each time.
Anyway, the question is: since I want to get the most possible out of seeing Dr De Meirleir, would I do better to see him in Brussels, where maybe he would have more time to consider my case, or is seeing him in Reno, Nevada (at the Whittemore Peterson Institute - much, much cheaper and easier travel, as I live in Arizona) just as good? I am concerned that he may be limited in time in Reno, if what I am reading is true, that he sees patients there only 3 days every other month.
In reading people's reports of trips to Brussels, it seems that most people are seen over at least two days. If he only has 3 days to see patients every other month at the WPI in Reno that would seem to make repeated visits over 2 or more days unlikely?
Does anyone have any experience with seeing Dr De Meirleir in Reno? Any insight into whether it would be worth the $$ to see him Brussels where he might have more time?
Thank you for your thoughts.
I am strongly considering seeing Dr De MeirLeir, as he appears to have the most experience successfully treating both ME/CFS and chronic intracellular infections, e.g. Lyme disease et al. My diagnosis is currently ambiguous - the Lyme tests are inconclusive, but my clinical presentation is highly suggestive: I had tick bites in an endemic area (SF Bay Area hills), a rash, and subsequent sudden onset of flu-like illness with hand stiffness and many other symptoms. So, I would like to see a doctor who is well versed in both ME/CFS and Lyme-type illness, and De Meirleir seems to be the best.
I have been seeing some good people: Dr Yang in San Diego, and Dr Kaufman in Mt View, California. However, I'm not seeing any improvement in my condition yet. Perhaps I am too impatient, as it's been less than a year with both of these doctors. However, I don't want to waste any more time...
My intent is to finally, after being ill for 23 years, to pull out all the stops to try to get better, as things have been very bad lately, and I am afraid of losing my ability to work. Currently, I work part-time, for a few days at at a time, and it sets me back for a week or more each time.
Anyway, the question is: since I want to get the most possible out of seeing Dr De Meirleir, would I do better to see him in Brussels, where maybe he would have more time to consider my case, or is seeing him in Reno, Nevada (at the Whittemore Peterson Institute - much, much cheaper and easier travel, as I live in Arizona) just as good? I am concerned that he may be limited in time in Reno, if what I am reading is true, that he sees patients there only 3 days every other month.
In reading people's reports of trips to Brussels, it seems that most people are seen over at least two days. If he only has 3 days to see patients every other month at the WPI in Reno that would seem to make repeated visits over 2 or more days unlikely?
Does anyone have any experience with seeing Dr De Meirleir in Reno? Any insight into whether it would be worth the $$ to see him Brussels where he might have more time?
Thank you for your thoughts.