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Anyone seen Vinod Patel Nuneaton West Midlands

Messages
2
I would love to hear anyone's experiences about seeing Vinod Patel at George Elliot Hospital Nuneaton for their ME. I am due to see him for Consultation and wondering if I've made right decision and if I'll even manage to keep appointments (I'm v.poorly).
 

Snowdrop

Rebel without a biscuit
Messages
2,933
I found this info from a link in an old PR thread: http://www.mepositive.talktalk.net/interview.htm

I don't know how helpful that will be I'm sure it would be best if someone here has direct experience.
One of the Q's is what disciplines are represented--it doesn't look promising.

Good luck to you in pursuing treatment.

If you like there is a forum for introducing yourself: http://forums.phoenixrising.me/index.php?forums/introduce-yourself.35/
which you may have already noticed. Lots of stuff here to ponder.
 
Messages
2
I found this info from a link in an old PR thread: http://www.mepositive.talktalk.net/interview.htm

I don't know how helpful that will be I'm sure it would be best if someone here has direct experience.
One of the Q's is what disciplines are represented--it doesn't look promising.

Good luck to you in pursuing treatment.

If you like there is a forum for introducing yourself: http://forums.phoenixrising.me/index.php?forums/introduce-yourself.35/
which you may have already noticed. Lots of stuff here to ponder.



Thank you for your reply and your thoughtfulness in finding that link. I am not very good with the computer or famliar with forums and not sure if I'm posting a reply to you correctly or not! I'll get the hang of it soon. I'll go & have a look at the introduce yourself forum now. Kindest regards to you Snowdrop
 
Messages
17
Found this thread, I was diagnosed by Dr Patel in December 2016 after many distressing referrals to other specialists some who said it was all in my head.

Dr Patel looked through my diary with photos and symptom tracking I had done with my husbands help. He asked me a few questions and my husband and examined me and diagnosed me with chronic fatigue syndrome.

my husband and I cried that we finally had an answer!

I had 4 appointments with Dr Patel. One was the initial consultation with diagnosis, I had another to explain what they do, order other tests, and offer possible treatments that have worked for some others and a final one to ensure we understand the condition. I do have a leaflet I will dig it out and post a picture here for others.

I signed up for GET, I did notice some improvement in the beginning but I think it now was because when I went to Dr Patel I was in a constant cycle of pushing myself, testing my limits and crashing - the diagnosis made me stop, knowing it wasn’t in my head and couldn’t be fixed with pushing myself;
I say I tried GET well my firm lasted a year of telephone appointments with the physiotherapist because I couldn’t get to the centre regularly and not crash and my activities were all about pacing. Learning I could wash up some days but I must sit down so I could do this more reliably on other days.

anyway this has gone more detailed than I anticipated apologies will stop here and just say:

i plateaud walking and moving onto actual GET didn’t work I fell back into a crash cycle. I was discharged from the programme.

I have attempted contacting Dr Patel via my GP this last year to see if he is offering any further trials or any advice on treatment as I’m still sick and still have episodes returning to bed even after 4 years but as yet no response has been received.
I hope this message finds you had a good experience with Dr Patel too.