Brisbane and Gold Coast, May 12

[alex3619]

NCNED is giving a public talk tomorrow at the Gold Coast at 1pm. I just found out about it, thanks to another member (who I will name if they would like me to).

Here is the notice: https://www.sciencedaily.com/releases/2016/05/160510093906.htm

The NCNED -- internationally recognised for research into CFS/ME -- will present a seminar on current research findings on this disease on International CFS/ME Awareness Day, Thursday May 12 at Griffith University, Gold Coast Campus, commencing 1pm, location G17, Lecture theatre 3.

I have great difficulty travelling on my own. If anyone is going from Brisbane to the Gold Coast for this, would it be possible to pick me up? I live between Brisbane and the Gold Coast, in Logan. I don't know what state I will be in but I am willing to have a bad day to attend this.

 

[Kati]

NCNED is giving a public talk tomorrow at the Gold Coast at 1pm. I just found out about it, thanks to another member (who I will name if they would like me to).

Here is the notice: https://www.sciencedaily.com/releases/2016/05/160510093906.htm



I have great difficulty travelling on my own. If anyone is going from Brisbane to the Gold Coast for this, would it be possible to pick me up? I live between Brisbane and the Gold Coast, in Logan. I don't know what state I will be in but I am willing to have a bad day to attend this.

I hope you find a ride, @alex3619

 

[shannah]

An update on the latest would be wonderful.

 

[shannah]

Here's a couple of articles on the new findings.

http://app.griffith.edu.au/news/2015/05/12/griffith-research-sheds-new-light-on-cause-of-cfs/?src=hp

http://www.abc.net.au/pm/content/2016/s4415928.htm


To recap the information posted in the 2 links:

New research from Australia into M.E. reveals that the genes are altered (which explains the symptoms but not the cause).
This still leaves important questions as to cause. Why are the genes altered? What is altering the genes?

They want to develop a blood test but this will take years to achieve.

 

[Navid]

do these docs/researchers have any new treatments up their sleeves? no new treatments in so long. anyone hear anything about tavegyl?

 

[shannah]

I have a question. Do genetic changes take place in other diseases?


From the release at this link:

http://app.griffith.edu.au/news/2015/05/12/griffith-research-sheds-new-light-on-cause-of-cfs/?src=hp

"The results reveal genetic changes in important receptors associated with immunological and cellular function and contribute to the development of this complex illness."

"important signalling mechanisms are disrupted as a result of these genetic changes involving the detection and response to threats."

“These are primitive genes that are involved in many cellular signals in the brain, gut, cardiovascular and immune systems, as well as in the mediation of pain.”

plus the information at this site:

http://www.abc.net.au/pm/content/2016/s4415928.htm

DON STAINES: We're looking at changes in very specific parts of gene that then translate to certain receptors or proteins in the body that have key roles in metabolism, neuronal function, cardiovascular function and so on, so it's probably not surprising that it's taken this long to work it out.

 

[Valentijn]

Do genetic changes take place in other diseases?

I don't think that's what they're saying regarding ME. Just that they've found variants correlated with ME patients. These variants would be present since birth.

But they typically have trouble with their statistical methodology, so I wouldn't take their genetic research seriously at this point.