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Hey guys, I'm not sure if I'm posting this in the right spot. Please let me know if I should post elsewhere.
To anybody who can help:
Ok, I have MAJOR issues going on with my thyroid. LONG story short-I have several autoimmune diseases and have seen tons of doctors, endocrinologists, specialists, etc and nobody can seem to tell me what's going on. I have had heavy metal chelations, mold chelations, live organic lifestyle, no gluten, no dairy, no soy, low sugar, I do coffee enemas, take all the correct supplements, done countless hours of research, tried every. single. medication for hypothyroidism there is. Literally. Turns out-I am Thyroid Resistant. I don't have the genetic TR and my labs are always fairly normal. I don't have high reverse T3-covered that. I've had a thyroid US-normal of course. I do have Hashimoto's because I can tell you the exact date it hit me and I exhibited every basic symptom of hashi's there is. From my thyroid swelling until i couldn't hardly swallow, hoarsness, hair loss, extreme wght gain, severe coldness, etc etc. It runs on BOTH sides of my family. My mom, gmother, aunt, etc. But my problem with treating my hypothyroidism is getting severe. It has affected my adrenals, blood sugar, and my cholesteral is sky high. I also have a super strong ammonia smell to my urine. I have been checked and checked and checked for parasites, mold, bacteria, heavy metals, etc. I'm starting to think I have something wrong with my mitochondria because when i try t4 or t3 meds it's like drinking water. NOTHING. And i mean nothing happens. I even tried the Thyroid resistant treatment of high dose compounded T3 (cytomel made me sicker-maybe the talc?) and it did nothing but made me lose muscle. I even went up to 230mcg T3 and it didn't help. I don't know how that;s even possible. But I'm here because I'm truly starting to worry that I might not make it through this if I don't find help. I have a 4 year old daughter and I'm trying my best to find help. I feel like i'm in the latter stages of hypothyroidism. I have started to have chest pains/heart flutters/racing and my eyes stay swollen, esp the hood of my eyes, and temp drops to 95 degrees. My mouth has started to turn down and basically my appearance is changing. I have read a lot of books including Dr. Mark Starr's Hypothyroidism type II. The specialists that I have been too do not know what else to try since the high dose t3 didnt' work. I am speaking to my PCP about the low dose naltrexone but since i think it is my last chance i'm almost afraid to start due to the fact that it might not work. If ANYONE can offer just a little help, I would greatly appreciate it. If you could recommend any type of treatment, doctors, even research clinics or websites that would really help. I stay on the internet researching things and I really am grateful to sites like STTM and hypothyroid mom, chris kresser, and this site, etc because I probably wouldn't be where I am right now. I hope someone sees this. Thanks in advance.
To anybody who can help:
Ok, I have MAJOR issues going on with my thyroid. LONG story short-I have several autoimmune diseases and have seen tons of doctors, endocrinologists, specialists, etc and nobody can seem to tell me what's going on. I have had heavy metal chelations, mold chelations, live organic lifestyle, no gluten, no dairy, no soy, low sugar, I do coffee enemas, take all the correct supplements, done countless hours of research, tried every. single. medication for hypothyroidism there is. Literally. Turns out-I am Thyroid Resistant. I don't have the genetic TR and my labs are always fairly normal. I don't have high reverse T3-covered that. I've had a thyroid US-normal of course. I do have Hashimoto's because I can tell you the exact date it hit me and I exhibited every basic symptom of hashi's there is. From my thyroid swelling until i couldn't hardly swallow, hoarsness, hair loss, extreme wght gain, severe coldness, etc etc. It runs on BOTH sides of my family. My mom, gmother, aunt, etc. But my problem with treating my hypothyroidism is getting severe. It has affected my adrenals, blood sugar, and my cholesteral is sky high. I also have a super strong ammonia smell to my urine. I have been checked and checked and checked for parasites, mold, bacteria, heavy metals, etc. I'm starting to think I have something wrong with my mitochondria because when i try t4 or t3 meds it's like drinking water. NOTHING. And i mean nothing happens. I even tried the Thyroid resistant treatment of high dose compounded T3 (cytomel made me sicker-maybe the talc?) and it did nothing but made me lose muscle. I even went up to 230mcg T3 and it didn't help. I don't know how that;s even possible. But I'm here because I'm truly starting to worry that I might not make it through this if I don't find help. I have a 4 year old daughter and I'm trying my best to find help. I feel like i'm in the latter stages of hypothyroidism. I have started to have chest pains/heart flutters/racing and my eyes stay swollen, esp the hood of my eyes, and temp drops to 95 degrees. My mouth has started to turn down and basically my appearance is changing. I have read a lot of books including Dr. Mark Starr's Hypothyroidism type II. The specialists that I have been too do not know what else to try since the high dose t3 didnt' work. I am speaking to my PCP about the low dose naltrexone but since i think it is my last chance i'm almost afraid to start due to the fact that it might not work. If ANYONE can offer just a little help, I would greatly appreciate it. If you could recommend any type of treatment, doctors, even research clinics or websites that would really help. I stay on the internet researching things and I really am grateful to sites like STTM and hypothyroid mom, chris kresser, and this site, etc because I probably wouldn't be where I am right now. I hope someone sees this. Thanks in advance.
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