I've just got back from my appointment at the Charite in Berlin. I thought of writing a brief report, but instead I am making a self-indulgent wordy blog about it. Dammit I just feel like writing something. Part 1 is up in the blog section. Part 2 coming tomorrow, or whenever, you know how it is ...
-
Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
To become a member, simply click the Register button at the top right.
My trip to the Charite in Berlin
- Thread starter TiredSam
- Start date
Sushi
Moderation Resource Albuquerque
- Messages
- 19,935
- Location
- Albuquerque
Loved the images. You gave a really good "feel" of the trip.
I hope "whenever" happens sooner rather than later. After reading Part 1, I want to know the rest of the story. A real page turner!
*GG*
senior member
- Messages
- 6,389
- Location
- Concord, NH
I remember some talk about Berlin, but not understanding this thread. We have a link or 2?
GG
GG
This thread is just to notify people of my blog post here:
http://forums.phoenixrising.me/index.php?entries/trip-to-the-charite-in-berlin-part-1.1952/
There are links in that blog with more information about the Charite and how I got to go there. The Charite is the name of the University Hospital in Berlin. They have a CFS outpatients' clinic in their Immunology department. They also do research into CFS under the direction of Prof. MD. Carmen Scheibenbogen, and have published 3 papers recently that have been discussed on PR.
They investigate CFS as a deficiency of the immune system, and are overwhelmed by the demand from CFS patients, I had to wait 9 months for an appointment. I am in the German health system so I got to go, I have heard that they don't take patients from abroad. I wanted to go because in my opinion it's where the real experts are in Germany and I didn't have to pay thousands for a private appointment.
Biarritz13
Senior Member
- Messages
- 699
- Location
- France
Thank you Sam!
BurnA
Senior Member
- Messages
- 2,087
At this rate I'm expecting 4 or 5 parts, but i don't mind, they make for great reading!
We know your game: "make 'em laugh, make 'em cry, make 'em wait".
We can wait, but so impatiently that if you don't hurry up with the rest I'm going to write it for you.
BurnA
Senior Member
- Messages
- 2,087
Another cliffhanger !
Biarritz13
Senior Member
- Messages
- 699
- Location
- France
You are killing us "à petit feu"
Little Bluestem
All Good Things Must Come to an End
- Messages
- 4,930
It's great that you feel like doing something. Now off to read ...
I'm sorry, I want to find time to sit down and write it soon, but after the weekend it's back to work and having headaches and other stuff going on etc. It's definitely on the way, but we artists can't be rushed ...
I was thinking perhaps I should put the next installments behind a paywall, would that be ok with everyone?
worldbackwards
Senior Member
- Messages
- 2,051
Capitalist scum. Why don't you just collaborate on it with Sir Simon, eh, eh?
Part 4 is up, which moves the story on a little bit. This is only going to get done in dribs and drabs, but at least it's still free, due to the the militant reaction of a vociferous minority to my paywall suggestion which has forced me to have a panic button installed in my house.
I've done the cliff-hanger thing again, just because I can
I've done the cliff-hanger thing again, just because I can
worldbackwards
Senior Member
- Messages
- 2,051
Just release the Charite data, Sam. What have you got to hide? How do we know you aren't switching the endings?
Last edited: