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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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flordicortisone

Messages
37
Location
Hot Springs AR
Dr switched me to this plus the midodrine but I'm not gonna take that again what I want to know is do I need potassium supplements since this is at 0.1 mg per day? And any side effects i need to watch out for?
 

Gingergrrl

Senior Member
Messages
16,171
Your question is confusing but with Florinef you are supposed to supplement Potassium. I had horrible side effects from Florinef even at 1/4 of the dose you are taking but I do very well with Midodrine.
 

Gingergrrl

Senior Member
Messages
16,171
what side effects did you have?

I had daily severe headaches and intracranial pressure from Florinef which is not at all a normal symptom for me. It never raised my BP as it was supposed to and in general I just felt sick and horrible on it. It also contained two yellow food dyes (which I later became severely allergic to when I developed MCAS) and am not sure if this played any role in my specific case but suspect it didn't help.