Dr.Patient
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Has the unbearable, wanting to die, intensity of your fatigue gone down over time? Please help, I want to know...
Thank you.
Thank you.
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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Has the unbearable, wanting to die, intensity of your fatigue gone down over time? Please help, I want to know...
Thank you.
I agree @Kati , it's not plain fatigue itself, it's neuroimmune induced weakness that sucks the life out of you.This is not fatigue.
I like this definition! And yes, it has gotten better in the sense that it's less up and down. I guess for me it was pacing and learning about how the illness works (i.e.: pushing through = feeling worse later). Pacing makes me more stable but doesn't make me able to increase activity in any way. But I'll take stable & weak over deep crashes any day.it's neuroimmune induced weakness that sucks the life out of you.
I would not say you are in the minority. I was addressing fatigue not autonomic issues. They are two separate things, and perhaps the majority of us have both, while others have just fatigue or just autonomic issues.I am in the minority in that I truly do not feel fatigue versus complete autonomic dysfunction and shortness of breath.
I do have other symptoms though, a long list. They tend to get lost in fatigue discussions.
Fatigue is too broad a term. The unrelenting crushing exhaustion I had for years in the 90s is so very very different from just fatigue.