Hello to everyone,
I'm new here and not good at knowing where to start/how to post. I don't have an official CFS diagnosis, but whatever this illness is, I've had it for 2 years. I'm currently taking resources from this site to my primary doctor.
I would like help understanding the metabolic piece of ME/CFS. If I'm understanding right, there's some kind of misfunction at the cellular level when it comes to the energy transfer process? Yes?
I found phoenixrising because a search I did turned up a post from 2012 on hypoglycemic-like symptoms. The best hypothesis I have on one piece of my own condition is that my glycogen synthesis process is damaged. If I don't eat every 2-3 hours, I "crash" (increase in temp, sweating, heart racing/palpitations, hands/body trembling, dizziness, feeling faint, and finally severe brain fog). I've had such a crash in my doc's office and she tested blood serum glucose right in the middle of the crash and it was normal. So she's stumped and asking me what to do next.
Is this something people with ME/CFS experience?
That's been going on for 2 years now. No clue how to address it other than eat every couple hours... But it gets complicated by the general fatigue, and the horrible flu-like fatigue that I always get with exertion of any kind - worse if it's both physical and emotional. And pain, and..., and... Activity level is between 4 and 3. Anyway, I should probably introduce myself properly in the other section, but seems like too much work, and I really want to understand the metabolism bit.
Thanks so much!
I'm new here and not good at knowing where to start/how to post. I don't have an official CFS diagnosis, but whatever this illness is, I've had it for 2 years. I'm currently taking resources from this site to my primary doctor.
I would like help understanding the metabolic piece of ME/CFS. If I'm understanding right, there's some kind of misfunction at the cellular level when it comes to the energy transfer process? Yes?
I found phoenixrising because a search I did turned up a post from 2012 on hypoglycemic-like symptoms. The best hypothesis I have on one piece of my own condition is that my glycogen synthesis process is damaged. If I don't eat every 2-3 hours, I "crash" (increase in temp, sweating, heart racing/palpitations, hands/body trembling, dizziness, feeling faint, and finally severe brain fog). I've had such a crash in my doc's office and she tested blood serum glucose right in the middle of the crash and it was normal. So she's stumped and asking me what to do next.
Is this something people with ME/CFS experience?
That's been going on for 2 years now. No clue how to address it other than eat every couple hours... But it gets complicated by the general fatigue, and the horrible flu-like fatigue that I always get with exertion of any kind - worse if it's both physical and emotional. And pain, and..., and... Activity level is between 4 and 3. Anyway, I should probably introduce myself properly in the other section, but seems like too much work, and I really want to understand the metabolism bit.
Thanks so much!