sparklehoof
Senior Member
- Messages
- 186
- Location
- North Carolina
How long is the projected wait time for a treatment that will be covered by Medicare?
I know we have no exact way of knowing. My doctors have given up and said there is nothing else they can do to help me and I haven't found another doctor who is up to taking me. I know I sound like an impatient wining child in the back seat of the car asking, "are we there yet?" But I'd love to hear from you guys. I've been trying to read journal articles and watch YouTube solve me/CFS conference videos, but I'm struggling make sense of where we are right now. It seems like there are a multitude of hypotheses that range from environmental contamination to gut flora to genetics. There are petitions in circulation asking for funding to test some of these ideas. There's the controversial PACE trial and the RTX trial and experimentation with Miryarisan and supplements... But, I suppose my question is.how much longer do I need to live my life from my bed more than not with no doctor and no affordable treatment- how much longer do those worse off than me have to wait...how much longer do any of us expect to wait before we can access something that at least helps some cohorts? Thank you to those of you reading and those of you who share your thoughts in this thread. Maybe be the double magic super '8' crystal ball
I know we have no exact way of knowing. My doctors have given up and said there is nothing else they can do to help me and I haven't found another doctor who is up to taking me. I know I sound like an impatient wining child in the back seat of the car asking, "are we there yet?" But I'd love to hear from you guys. I've been trying to read journal articles and watch YouTube solve me/CFS conference videos, but I'm struggling make sense of where we are right now. It seems like there are a multitude of hypotheses that range from environmental contamination to gut flora to genetics. There are petitions in circulation asking for funding to test some of these ideas. There's the controversial PACE trial and the RTX trial and experimentation with Miryarisan and supplements... But, I suppose my question is.how much longer do I need to live my life from my bed more than not with no doctor and no affordable treatment- how much longer do those worse off than me have to wait...how much longer do any of us expect to wait before we can access something that at least helps some cohorts? Thank you to those of you reading and those of you who share your thoughts in this thread. Maybe be the double magic super '8' crystal ball