Just got lab work back. My HHV-6 levels have gone down from 13.99 to 7.28, since starting treatment in February!
My IGF-1 is low - 288, reference range 93-342
And I have high cortisol - 21.8
I know those are not uncommon for CFS. My Parvovirus did not move at all- 5.7. I've been taking Oxymatrine for that (although not as long as Valcyte), and my doctor also just had me start taking Amantadine. I know the only proven treatment is IVIG/ GG shots, but there is no way I can afford it, so what are my options? My immunoglobulin levels are good so how would I get covered for it? Does anyone know how much the GG shots cost?
I am also working on improving my sleep so I can get my growth hormone level up and start feeling better in that aspect, trying different drug and non-drug options.
My IGF-1 is low - 288, reference range 93-342
And I have high cortisol - 21.8
I know those are not uncommon for CFS. My Parvovirus did not move at all- 5.7. I've been taking Oxymatrine for that (although not as long as Valcyte), and my doctor also just had me start taking Amantadine. I know the only proven treatment is IVIG/ GG shots, but there is no way I can afford it, so what are my options? My immunoglobulin levels are good so how would I get covered for it? Does anyone know how much the GG shots cost?
I am also working on improving my sleep so I can get my growth hormone level up and start feeling better in that aspect, trying different drug and non-drug options.
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