frenchtulip
Senior Member
- Messages
- 760
Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
To become a member, simply click the Register button at the top right.
I don't think they give much health data anymore, especially if you're in the US. But even when they did give a lot of info, you'd have to "unlock" the reports regarding specific SNPs which directly cause nasty diseases.Also I have some anxiety about getting too much information with 23andme. Parkinsons is in my family. I don't want to know if I'm likely to get that. Are there options where you don't test for certain things (or agree in advance that 23andme won't tell you)?
The Livewello interpretations would not be useful for processing/comparing the genetic data of many patients. The project should purely be interested in the raw data, especially since things like Livewello are focused on playing around with trendy topics like methylation.Dr. rey In Klimas office prefers this site her: LIVEWELLO. You pay $20.00 to upload your data and they can tell you a bit more about which drugs work best for you or function worse for you.
This is also extremely unlikely.It means you may get to learn about your specific traits of this illness.
Klimas's project is to compare the raw data of as huge a number of patients and controls as possible.The Livewello interpretations would not be useful for processing/comparing the genetic data of many patients. The project should purely be interested in the raw data, especially since things like Livewello are focused on playing around with trendy topics like methylation.
I would consider Livewello to be a complete waste of money in the context of a genetic study, and it does not make sense to see it recommended here.
This is also extremely unlikely.
Hopefully the people planning to conduct the analysis can disseminate some better information soon.
No, I wouldn't share that data without permission, nor could I fill out the questionnaires for people.@Valentijn Did you submit the results you've gathered from this forum already? (Otherwise, I'll submit mine separately - don't want my results submitted twice...)
Results must be submitted separately by each individual. Each participant will receive a coded email with a link to a survey they must complete. That survey link will also provide a way to upload your genetic results.@Valentijn Did you submit the results you've gathered from this forum already? (Otherwise, I'll submit mine separately - don't want my results submitted twice...)