Countrygirl
Senior Member
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I have just received an e-mail from an organisation called Change for ME.
I will copy it here for you to read. I note some of PR members have written comments under the film The Last Great Medical Coverup.
Change for ME is an independent grassroots organisation that actively works towards health reform for people living with M.E., more particularly creating a more reliable, educated medical community.
Change For M.E. Change For Us, a patient run campaign, was launched last May, and has since been gaining momentum with patients and associate M.E. charities. Over the past 6 months, we have been working closely with patients across the country on our short film. Last Friday, The Last Great Medical Cover Up was released, and has since been viewed nearly 4,000 times.
Now almost a week on, we are currently seeking out coverage by mainstream media. The more response we achieve on our short film, the more plausible this becomes. We have also launched a petition calling for specialist care for M.E. patients, and a reform on NICE guidelines.
My intention of writing to you today is to ensure that you are aware of the campaign's work, and to ask you to please pass on our film, and more particularly our petition, which is struggling to gain momentum. You can find both below:
Film:
Petition:
https://www.change.org/p/nhs-englan...ts-specialist-care-and-reform-nice-guidelines
Change For M.E. Change For Us has a growing Twitter and Facebook presence, which you can find here:
https://www.facebook.com/Change-For-ME-Change-For-Us-501365060015652/?ref=aymt_homepage_panel
https://twitter.com/changeformecam
Many thanks for taking the time to read my message. Please be sure to pass on to as many friends, family and colleagues as possible. If one thing is clear, people with M.E. need the support of the general public, and to take the opportunity to educate them on this deeply misunderstood condition.
If you have any questions, or if I can help you further, please do not hesitate to contact me.
Kind regards,
L.A. Cooper
Change For ME
They have a petition to sign that demands specialist care for ME patients as well as reform of the NICE guidelines. I would like to know just what they mean by the term specialist care' which they do not explain. I do have to wonder how much thought has gone into this, although it is clearly well intentioned.
I will copy it here for you to read. I note some of PR members have written comments under the film The Last Great Medical Coverup.
Change for ME is an independent grassroots organisation that actively works towards health reform for people living with M.E., more particularly creating a more reliable, educated medical community.
Change For M.E. Change For Us, a patient run campaign, was launched last May, and has since been gaining momentum with patients and associate M.E. charities. Over the past 6 months, we have been working closely with patients across the country on our short film. Last Friday, The Last Great Medical Cover Up was released, and has since been viewed nearly 4,000 times.
Now almost a week on, we are currently seeking out coverage by mainstream media. The more response we achieve on our short film, the more plausible this becomes. We have also launched a petition calling for specialist care for M.E. patients, and a reform on NICE guidelines.
My intention of writing to you today is to ensure that you are aware of the campaign's work, and to ask you to please pass on our film, and more particularly our petition, which is struggling to gain momentum. You can find both below:
Film:
Petition:
https://www.change.org/p/nhs-englan...ts-specialist-care-and-reform-nice-guidelines
Change For M.E. Change For Us has a growing Twitter and Facebook presence, which you can find here:
https://www.facebook.com/Change-For-ME-Change-For-Us-501365060015652/?ref=aymt_homepage_panel
https://twitter.com/changeformecam
Many thanks for taking the time to read my message. Please be sure to pass on to as many friends, family and colleagues as possible. If one thing is clear, people with M.E. need the support of the general public, and to take the opportunity to educate them on this deeply misunderstood condition.
If you have any questions, or if I can help you further, please do not hesitate to contact me.
Kind regards,
L.A. Cooper
Change For ME
They have a petition to sign that demands specialist care for ME patients as well as reform of the NICE guidelines. I would like to know just what they mean by the term specialist care' which they do not explain. I do have to wonder how much thought has gone into this, although it is clearly well intentioned.
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