- Messages
- 26
Hello my friends,
I hope you are well today, given the circumstances.
I have a few quick questions, which I hope a few of you will be able to throw some light on. I know CFS is such a confusing and individual thing that it is always hard to get definite answers, but I have faith in the people in this forum, because most of us have gone through similar, horrible, experiences.
Basically, my first questions is I guess about crashes. The way I seem to work is that, irregardless of what I do, I will go through phases/cycles of condition. For example, I keep a diary of my symptoms and how I’m feeling. At the end of each day I will give myself a score out of 10. What seems to happen is that the numbers will follow a pattern sort of like this: 7,7,6,6,6,5,5,5,5,4,4,5,5,6,6,6,7,7. So even if I rest completely for a week, it is still very likely that I will be heading towards a period of feeling worse. However, after a few days of feeling horrible, I know I will probably start to feel a little bit better over the next few days.
The most confusing thing, and the thing I want to raise here is this – even if I exert myself, this cycle is not effected. FOR EXAMPLE, this last week I had known I was heading downhill towards a bad phase. I was really annoyed because I had work on Friday and Saturday nights, and I really really really did not feel like working – I was so exhausted, and dizzy etc etc. I worked both these nights (in customer service, so I am on my feet for 3-4 hours at a time), and Saturday especially was busy because I was behind the grill. It’s getting towards summer here and I actually built up a sweat for pretty much the first time since I got ill 10 months ago. My question is, why, after exerting myself more than I should with CFS, do I not feel worse in the following days. It is now Monday, and I would rate myself at a 6/10. On Friday I was a 4/10, and that was before working two shifts???
My second question is about red/purple skin. For a number of months now, I have had red/purple skin on my hands. Sometimes it is worse than others, but I can detect no pattern. It is not itchy or sore. I also have purple ankles, not itchy, swollen, cold, or sore. Just purple. My kneecaps are also often red, as are my elbows. When I press down on any of this skin, it goes white for a number of seconds. Another thing which is maybe relevant, I think my fingernails are whiter, and especially when I’m in the shower, they go very white. What is up with this??
Thank you very much for your time, and I hope the day is kind to you.
Stay strong.
PS I am a 20 year old male, previously healthy and fit
I hope you are well today, given the circumstances.
I have a few quick questions, which I hope a few of you will be able to throw some light on. I know CFS is such a confusing and individual thing that it is always hard to get definite answers, but I have faith in the people in this forum, because most of us have gone through similar, horrible, experiences.
Basically, my first questions is I guess about crashes. The way I seem to work is that, irregardless of what I do, I will go through phases/cycles of condition. For example, I keep a diary of my symptoms and how I’m feeling. At the end of each day I will give myself a score out of 10. What seems to happen is that the numbers will follow a pattern sort of like this: 7,7,6,6,6,5,5,5,5,4,4,5,5,6,6,6,7,7. So even if I rest completely for a week, it is still very likely that I will be heading towards a period of feeling worse. However, after a few days of feeling horrible, I know I will probably start to feel a little bit better over the next few days.
The most confusing thing, and the thing I want to raise here is this – even if I exert myself, this cycle is not effected. FOR EXAMPLE, this last week I had known I was heading downhill towards a bad phase. I was really annoyed because I had work on Friday and Saturday nights, and I really really really did not feel like working – I was so exhausted, and dizzy etc etc. I worked both these nights (in customer service, so I am on my feet for 3-4 hours at a time), and Saturday especially was busy because I was behind the grill. It’s getting towards summer here and I actually built up a sweat for pretty much the first time since I got ill 10 months ago. My question is, why, after exerting myself more than I should with CFS, do I not feel worse in the following days. It is now Monday, and I would rate myself at a 6/10. On Friday I was a 4/10, and that was before working two shifts???
My second question is about red/purple skin. For a number of months now, I have had red/purple skin on my hands. Sometimes it is worse than others, but I can detect no pattern. It is not itchy or sore. I also have purple ankles, not itchy, swollen, cold, or sore. Just purple. My kneecaps are also often red, as are my elbows. When I press down on any of this skin, it goes white for a number of seconds. Another thing which is maybe relevant, I think my fingernails are whiter, and especially when I’m in the shower, they go very white. What is up with this??
Thank you very much for your time, and I hope the day is kind to you.
Stay strong.
PS I am a 20 year old male, previously healthy and fit