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please help me write to Richard Branson

knackers323

Senior Member
Messages
1,625
Hi people is there a good writer out there that is up to writting a letter to Richard Branson or someone similar asking them to get involved in getting some proper exceptance and research into cfs/me.

Maybe if we coukd write a draft letter which we coukd then send to everyone we can think of that is in a position to help.

We could either get one ketter with many signatures or just bambard them with individual letters.

We have to do something, we have been very patient for a very long time and are sikently losing our lives.

I just read some of @Derek Conklin story and it is a total disgrace that society, medical profession, governments allow this sort of thing to happen. And Derek is far from the only one. I've read of children going through the same thing and nothing gets done, meanwhile millions of dollars get wasted/spent every year on illnesses and causes that are much less extreme and less deserving than CFS.

When will this end? At the moment, as positive as I try to remain for those with CFS, the current future is bleak.

We need to make something change. We need a big advocate.

Thoughts?
 

drob31

Senior Member
Messages
1,487
I think 2 big things have happened lately. 1. A billionaire and his family was diagnosed with Lyme (I forgot the name). 2. A top scientists son came down with CFS, and he's devoting his life's work to it.

But I agree, the more the better.
 

Eeyore

Senior Member
Messages
595
It's actually amazing how little money would likely need to be directed to ME research given recent breakthroughs to actually make major progress and help so many. It seems a very efficient use of funds right now.

I'm sure this year the US will spend more on treatments for male pattern baldness though. And Britain on psychobabble.
 

sillysocks84

Senior Member
Messages
445
It's actually amazing how little money would likely need to be directed to ME research given recent breakthroughs to actually make major progress and help so many. It seems a very efficient use of funds right now.
This should definitely go in the letter to the Arnolds!
 

knackers323

Senior Member
Messages
1,625
Who is the scientist? Not Dr Chia?

What are the breakthroughs?

There were many I could think of, I just thought Brandon because he seems like a pretty down to earth guy who Might be up for this type of thing
 

sillysocks84

Senior Member
Messages
445
Who is the scientist? Not Dr Chia?

What are the breakthroughs?

There were many I could think of, I just thought Brandon because he seems like a pretty down to earth guy who Might be up for this type of thing
It would probably be good to try to contact Richard Branson and everyone in a position to help. How would we contact him?
 

sillysocks84

Senior Member
Messages
445
Got a response from laura and John arnold foundation. They said they will be in touch if interested . Maybe many of us should email the foundation. Explaining cfs me and pwmes and how it's a drag on the economy and etc. I also stated Whitney dafoe's illness, the scientists son who just became ill.
 
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knackers323

Senior Member
Messages
1,625
Got a response from laura and John arnold foundation. They said they will be in touch if interested . Maybe many of us should email the foundation. Explaining cfs me and pwmes and how it's a drag on the economy and etc. I also stated Whitney dafoe's illness, the scientists son who just became ill.

any reply yet mate?

dick smith is taking suggestions as to where he should give $1 mill to this Christmas if anyone else wants to get on his site and let him know